“When we speak we are afraid our words will not be heard or welcomed. But when we are silent, we are still afraid. So it is better to speak.” ~Audre Lorde

As my 41st birthday approaches, I am reflecting on my life since September 22nd of last year. I am amazed and even a little proud of how much I've grown and learned about myself...and about sickle cell.…

It deeply saddens me that there are so many of us who still suffer in silence. I know what its like to feel like you are all alone in the struggle to be well, maintain, manage and cope with having SC. I understand the constant battle to live a 'normal', productive and uninterrupted life.

Likewise, I also know that it can be difficult to keep a positive attitude. To focus on what is good and right in your life instead of the pain and what you…

This is Worth Sharing. Take What You will From It...

THE TEN COMMANDMENTS OF SICKLE CELL DISEASE

1. Accept Your Disease. Don't ignore it. Respect it, don't fear it. Learn how to master it and not let it master you.…

Perhaps the most important thing we can undertake toward the reduction of fear is to make it easier for people to accept themselves, to like themselves.

~Bonaro Overstreet

FEAR

Like my favorite fragrance, I have wear it around my neck.

Its heavy.

It…

I am wondering if anyone on this forumn has done or heard of research on the medicinal value of smoking marijuana? I have always smoked marijuana - long before I knew what the world medicinal meant - but it was mainly because I wanted to. I enjoyed it.



Now, I honestly believe that my smoking marijuana aids me in managing SC in many ways. Not only does it serve as a buffer to stress, it also helps me sleep and makes it more bearable to endure the constant, everyday pain in…

Hi, I'm a pediatric doctor in DC working on trying to create an educational website just for teens with sickle cell to help them with transition -- the process of moving from a pediatric to adult doctor. We hope this website will help teens better understand their health condition and manage it successfully as they become independent adults.…

Hi All,

I am new to this site but I love what I see already. I am so happy I found this and it's comforting to know I can reach out to others just like me living with sc.

I wanted to know if anyone lives in the Bay Area of Ca? I am asking because I would like to connect with you (I want to connect with everyone really), but I tend to have a hard time with not having people close to me in which I would like to meet up with from time to time.

I hope…

My daughter has the majority of her pain in her legs so it is hard for her to walk when she is in crisis. Does anyone else have this problem, it makes her life very difficult. For the past 2 years she has missed so much school. She goes to school for three weeks and then she out for two weekks, I took her to the dr and they say her blood work is good. I took her to a pain management specailist and they said she is very strong and doesnt need any stroner medication. They gave her a medicine…

'Mini' Transplant May Reverse Severe Sickle Cell Disease

Researchers Find Key To Keeping Cells In…

Hello Everyone:

I hope all is well with your health. I haven't been on for a while I am doing well with my health. I have been busy with my kids all of there fundraisers from school. I will be back later or tomorrow. take care and healthy.

Etta

Remington College and the Sickle Cell Disease Association of America are partnering for a series of blood drives to be held at Remington College campuses across the country throughout the year. The program is called “3 Lives” - because three lives may be saved for every one pint of blood donated.…