A community for people living with sickle cell disease and also open to those with the trait and families. Follow on us Twitter: @sikcell

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Ade Dotun left a comment for jonito edoh
"/happy birthday Jonito, hope you are doing well!"
16 hours ago
Claude L. Johnson Jr. posted a discussion

Sickle Cell Patients and COVID-19 Vaccine Adverse Reactions?

Let me preface this post by saying that first, I am specifically interested in hearing the *bad* stories about Sickle Cell patient responses to the COVID-19 vaccines. Second, I'm mostly interested in hearing about adverse reactions to the mRNA vaccines, e.g. Pfizer/Bio-N-Tech's and Moderna's vaccines. Hearing about adverse reactions to the AstraZeneca or J&J vaccine are fine but my focus, and what I intend to receive, are 1 of the 2 mRNA vaccines.That said, I want to hear about particular…See More
Claude L. Johnson Jr. replied to Karen Vieira's discussion Clinical trial for kids with sickle cell
Claude L. Johnson Jr. replied to Bukky Ade's discussion Sickle Cell Travel Hacks
"1. If you're on Endari, take it before and during long flights. (5+ hours would be my recommendation by experiment for yourself.) If you're on longer flights, 2 - 3 times during the flight. (I lived in Abu Dhabi for a year. 13 hours from…"


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Blog Posts

Sickle cell awareness month 2020!

Posted by Ade Dotun on September 8, 2020 at 5:18pm 1 Comment

The Sickle Cell Podcast Feat. Ade

Posted by Ade Dotun on August 26, 2019 at 9:38pm 0 Comments


Posted by Sickle Cell Warrior on August 27, 2009 at 4:09am 1 Comment


Posted by Sustain on April 18, 2016 at 4:45pm 3 Comments

All Sickle cell trials in the US

Posted by Ade Dotun on February 11, 2015 at 10:06pm 0 Comments


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