Ava Grace
  • Female
  • Owings Mills, MD
  • United States
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Future Treatments

Posted on January 21, 2010 at 4:17pm 1 Comment

Hey, all!



I hope everyone is doing well.



Last week, I took my daughter to her first hematologist appt at Johns Hopkins. She is 9 weeks old and has SS )o: Her hematologist told me that there are new, better treatments for SS coming down the pike, including less complicated bone marrow transplants and safer drugs, and that treatment will be much better for her generation than the preceding generations. However, I forgot to ask him when will those treatments be available. He… Continue

Sickle Cell Clinical Trials

Posted on October 1, 2009 at 10:21am 0 Comments

I would like to know if any SCD member of this site has ever participated in a SCD clinical trial. If so, what was the trial; what phase was the trial in, and what was your experience. Also, if you have never participated or inquired about a clinical trial, the please share your reason(s) why?



I ask this question because I have a baby girl due in Nov. and my husband and I found out during my 5th month that she will have SCD. I’ll have to post a blog about that whole ordeal some other… Continue

Pilot Program for a drug that targets sickle cell crisis

Posted on September 8, 2009 at 11:25am 1 Comment

I came across this article the other day and am keeping my fingers crossed that this drug will be proven effective for treating sickle cell crisis.

http://www.reuters.com/article/pressRelease/idUS174025+03-Sep-2009+BW20090903

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At 9:00pm on December 11, 2012, Ade Dotun gave Ava Grace a gift
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HAPPY BIRTHDAY!!
At 4:35am on September 4, 2009, Sickle Cell Warrior said…
Hey Ava,

Welcome to the Board...I'm sure you will learn alot. Feel free to share your story with us. I used to live in Owings Mills...small world huh!
At 10:36pm on September 3, 2009, Ade Dotun said…
Welcome to the community, hope you find it helpful!, btw, i went to school in owings mills
 
 
 

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