Forum Discussions (243)

Featured Discussions

SCD and Rheumatoid Arthritis

Just last Fall i was diagnoed with rheumatiod arthritis on top of my SCD. It is a huge pain because the medications the Dr have me on m…

Started by Austyn Hart-TinsleyLatest Reply

Hair Growth and SS

Hi all! This is for anyone who is trying to grow their hair, not just women. I have natural hair (no relaxer) and I watch lot of YT video…

Started by Bukky AdeLatest Reply

Corporate Work and Sickle Cell

I recently graduated from college and began working full time in consulting. I get up at 6 *cough 7* and usually dont get home until about…

Started by Bukky AdeLatest Reply

Discussions Replies Latest Activity

The Hibiscus Study

The Hibiscus Study™ is inviting adults and adolescents 12 to 65 years old with a clinical diagnosis of sickle cell disease (SCD) to take pa…

Started by Rachel Geiger

1 Jun 15, 2021
Reply by Ade Dotun

Sickle Cell Trials for South Florida residents

Hi my name is Rachel I work for a research facility in Miami, Florida. We are very passionate in helping fight the battle against SCD. The…

Started by Rachel Geiger

0 May 20, 2021

Sickle Cell Patients and COVID-19 Vaccine Adverse Reactions?

Let me preface this post by saying that first, I am specifically interested in hearing the *bad* stories about Sickle Cell patient response…

Started by Claude L. Johnson Jr.

1 May 10, 2021
Reply by Ade Dotun

Clinical trial for kids with sickle cell

Hello my fellow sickle cell warriors, There is a clinical trial for sickle cell going on in 11 cities in the US right now. It is for kids…

Started by Karen Vieira

1 Apr 18, 2021
Reply by Claude L. Johnson Jr.

Sickle Cell Travel Hacks

I traveled recently and found myself in a bit of pain from the cold on the plane (I should have known better and brought a blanket or hoodi…

Started by Bukky Ade

4 Apr 18, 2021
Reply by Claude L. Johnson Jr.

What do you think is a good quick career for black males who aren't physical strong with sickle cell?

What do you think is a good career for those with sickle cell (males)? You know the racism that tends to plaque us in corporate america? Bu…

Started by mike smith

10 Apr 18, 2021
Reply by Claude L. Johnson Jr.

FDA approves crizanlizumab-tmca for sickle cell disease

On November 15, 2019, Food and Drug Administration approved crizanlizumab-tmca (ADAKVEO, Novartis) to reduce the frequency of vaso-occlusiv…

Started by Ade Dotun

0 Nov 18, 2019

World Sickle Cell Day

The National Institutes of Health, the National, Heart, Lung, and Blood Institute (NHLBI) in the US says they're on track for a cure within…

Started by Julie

1 Aug 26, 2019
Reply by Ade Dotun

Cannabis for alternative medicines

Have you ever tried to used cannabis for medical purposes? Sickle cell anaemia can cause a multitude of symptoms to manifest, one of which…

Started by Daniel Lennox

1 Jan 27, 2019
Reply by Ade Dotun

Sickle cell Trait or Disease?

 I just wanted to know how many here are actually suffering from sickle cell symptoms because of their trait though they are not with SCD b…

Started by mayree egoor

1 Nov 5, 2018
Reply by Ade Dotun


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