The Sickle Cell Consortium and Cayenne Wellness Center host “The 3rd Annual 24 Hour Sickle Cell-a-thon Celebration: Sickle Cell Has No Color.” Today 12 AM EST to 11:59 PM EST. They will be sharing the many different ethnicities with sickle cell from around the world.  If you have not had the chance to join us in the past years, you’re in for a treat. For 24 hours, we Live stream different talks, activities, speakers, games, and much more with different organizations from around the…

Happy sickle cell awareness month Fam! Hope you are all doing well and doing something to help raise awareness this month of September. I did a video collab with the SAMI organization on confidence below, let me know you know your thoughts and what are some things that has helped you to build confidence in your journey so far? Look out for another podcast collab coming soon before the end of the month as well! Stay blessed!…

For world sickle cell day this year, I wrote a blog about tapping into your warrior mentality, check it out and my tweet in the links below.

Tapping Into the Warrior Mentality

My life has been characterized by tenacity, perseverance and determination; these values have been instilled in me through overcoming…

On November 25, 2019, the Food and Drug Administration granted accelerated approval to voxelotor (Oxbryta, Global Blood Therapeutics) for adults and pediatric patients 12 years of age and older with sickle cell disease.

The primary efficacy outcome measure was Hb response rate defined as an Hb increase of >1 g/dL from baseline to week 24. The response rate for voxelotor was 51.1% (46/90) compared to 6.5% (6/92) in the placebo group (p<0.0001). Additional efficacy…