We still Hope
AllStripes is transforming how families are involved in development of new treatments. They make it easy for patients and caregivers to contribute their de-identified medical records to advance research from home, at no cost. They just added sickle cell disease to their platform and are excited to have the community join the movement! You can accelerate drug development in Sickle cell disease, your experience with…Continue
Happy sickle cell awareness month Fam! Hope you are all doing well and doing something to help raise awareness this month of September. I did a video collab with the SAMI organization on confidence below, let me know you know your thoughts and what are some things that has helped you to build confidence in your journey so far? Look out for another podcast collab coming soon before the end of the month as well! Stay blessed!…Continue
For world sickle cell day this year, I wrote a blog about tapping into your warrior mentality, check it out and my tweet in the links below.
My life has been characterized by tenacity, perseverance and determination; these values have been instilled in me through overcoming…Continue
On November 25, 2019, the Food and Drug Administration granted accelerated approval to voxelotor (Oxbryta, Global Blood Therapeutics) for adults and pediatric patients 12 years of age and older with sickle cell disease.
The primary efficacy outcome measure was Hb response rate defined as an Hb increase of >1 g/dL from baseline to week 24. The response rate for voxelotor was 51.1% (46/90) compared to 6.5% (6/92) in the placebo group (p<0.0001). Additional efficacy…Continue
Checkout sickle cell 101 latest podcast episode with me :)