Ade Dotun's Blog (11)

Sickle cell awareness month 2020!

Happy sickle cell awareness month Fam! Hope you are all doing well and doing something to help raise awareness this month of September. I did a video collab with the SAMI organization on confidence below, let me know you know your thoughts and what are some things that has helped you to build confidence in your journey so far? Look out for another podcast collab coming soon before the end of the month as well! Stay blessed!…

Continue

Added by Ade Dotun on September 8, 2020 at 5:18pm — 1 Comment

Happy world sickle cell day 2020!

For world sickle cell day this year, I wrote a blog about tapping into your warrior mentality, check it out and my tweet in the links below.

Tapping Into the Warrior Mentality

My life has been characterized by tenacity, perseverance and determination; these values have been instilled in me through overcoming…

Continue

Added by Ade Dotun on June 19, 2020 at 4:30pm — No Comments

FDA approves voxelotor for sickle cell disease

On November 25, 2019, the Food and Drug Administration granted accelerated approval to voxelotor (Oxbryta, Global Blood Therapeutics) for adults and pediatric patients 12 years of age and older with sickle cell disease.

The primary efficacy outcome measure was Hb response rate defined as an Hb increase of >1 g/dL from baseline to week 24. The response rate for voxelotor was 51.1% (46/90) compared to 6.5% (6/92) in the placebo group (p<0.0001). Additional efficacy…

Continue

Added by Ade Dotun on November 27, 2019 at 7:01pm — No Comments

The Sickle Cell Podcast Feat. Ade

Checkout sickle cell 101 latest podcast episode with me :)

https://anchor.fm/thesicklecellpodcast/episodes/Why-Sickle-Cell--Feat--Ade-Adeyokunnu-e52cs5

Added by Ade Dotun on August 26, 2019 at 9:38pm — No Comments

Could gene therapy cure sickle cell anemia?

Hey Fam,

Its been a while, hope you are all well! I just wanted to share this recent successful potential future cure for those who have not heard about it yet. It was featured on CBS 60 minutes and promising as a potential cure in the future.

https://www.cbsnews.com/news/could-gene-therapy-cure-sickle-cell-anemia-60-minutes/

Stay…

Continue

Added by Ade Dotun on March 19, 2019 at 9:53am — 2 Comments

Sickle cell awareness month 2018

Please share what you are doing this month in honor of our month of the year!

Added by Ade Dotun on September 20, 2018 at 11:43am — 1 Comment

Tools to Increase Public Awareness and Knowledge of Sickle Cell Disease Undergraduate Challenge

Hey all,

Hope you are all well and enjoyed your weekend. I just wanted to pass along some wonderful information shared by a fellow warrior. The National Heart, Lung, and Blood Institute is having a "Novel, Innovative Tools to Increase Public Awareness and Knowledge of Sickle Cell Disease Undergraduate Challenge” and would like to encourage those who are eligible to please …

Continue

Added by Ade Dotun on November 4, 2015 at 10:17am — No Comments

All Sickle cell trials in the US

New site I found where you can look for trials in your country:…

Continue

Added by Ade Dotun on February 11, 2015 at 10:06pm — No Comments

Whats your average day like?

Hello all,

Just to get some convo going, Please share with the community what your average day is like and what your favorite part of the day is. For me its when i leave work n land on my bed

Added by Ade Dotun on May 22, 2013 at 11:42am — 4 Comments

Self pity by DH lawrence

I was inspired to post this poem from Alexia's blog post called "no title". This poem helped me out a lot:

I never saw a wild thing
sorry for itself.
A small bird will drop frozen dead from a bough
without ever having felt sorry for itself.

Added by Ade Dotun on November 12, 2010 at 11:30pm — No Comments

True Life ---I Have Sickle Cell

Hey all, i got this from sickle cell warriors blog, yal should def check her blog



Hey guys, MTV's True Life is doing a story on " I have a life altering ailment or illness." If you are interested getting our story out there then you need to send an e-mail to seriousillness@mtvn.com. You should include your name, location, phone...etc. Let's make sickle cell known to the folks at MTV~!

Added by Ade Dotun on September 21, 2009 at 7:24pm — 5 Comments

© 2021   Created by Ade Dotun.   Powered by

Badges  |  Report an Issue  |  Terms of Service