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Parents

Members: 47
Latest Activity: Jan 17, 2017

Discussion Forum

Do's & don't, things you learned the hard way...

Started by Donicka Rolle. Last reply by Imani Pittman Sep 23, 2014. 7 Replies

Managing a Sickle Cell Child

Started by Rotimi. Last reply by lilian mbori Sep 23, 2014. 16 Replies

Sickle cell trait in football players

Started by Lorena Madrigal Jun 3, 2013. 0 Replies

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Comment by Lorena Madrigal on July 18, 2013 at 5:38pm

Hi everybody!  Please help me enroll participants for the study on sickle cell trait football players. I am sure many people knows a sickle cell trait person who played in his youth!    I already got a participant from another site (inspire).  I still have not gotten a participant via this site.  Please help us!

Here is the information:

We are looking for former or current football players at any level (high school included) who are at least 18 years of age and who are sickle cell trait carriers. The purpose of the study is to determine why some carriers have health problems (some have died) associated with football training while others do not.  Our study is listed in the following  link: http://clinicaltrials.gov/ct2/show/NCT01891877?term=%22sickle+cell%...

Comment by Lorena Madrigal on July 9, 2013 at 5:52pm

Hi everybody, I am thrilled to share with you the news that our study on sickle cell trait football players is now in the CLINICAL TRIALS.GOV website. Please remember that we are looking for current of former sickle cell trait football players to enroll in our study.  The link is:

http://clinicaltrials.gov/ct2/show/NCT01891877?term=%22sickle+cell%22&lup_s=06%2F24%2F2013&lup_d=14&show_rss=Y&sel_rss=mod14

Comment by sandra on June 28, 2013 at 11:25am

Wow I didn't know that was possible ,Monica you are very lucky

Comment by Lorena Madrigal on June 27, 2013 at 8:49pm

Dear Iysha:  What a blessing that your daughter is doing so well!  Please, if any of your family's men played football in high school or college (or professional!), please encourage them to join the study on sickle cell trait in football players. https://www.facebook.com/sicklecell.carriers

Comment by Lorena Madrigal on June 27, 2013 at 8:46pm

Dear Monica: What a blessing!  Is any of your boys over 18 years of age?  We are recruiting participants for a study on sickle cell trait football players, but they have to be adults.  If you know anybody who used to play or anyone who is playing and is SCT, please encourage them to join the study at: https://www.facebook.com/sicklecell.carriers

Comment by Monica. Wilson on March 9, 2013 at 5:41am
I am a mother of 3 beautiful boys and I have sickle cell disease none of my kids have the disease I'm very careful in that aspect but it is still very challenging at times.
Comment by Shem R. Kavuku on May 20, 2012 at 4:39am

Hallo am father of a two years boy and i thank God for my son and supportive wife and family. As i have been on a wheel chair because of the osteoarthritis of both hips and the fact that its rendering disabled to some extent i see the pain in their eyes although they encourage me in all that i can. Its hard but just handing in there  

Comment by iysha on October 20, 2009 at 11:02am
Happy to see this sub-group on the site. I am the mother of a 20 month old daughter diagnosed with SS . She has been doing pretty well so far (thank God!) she has had 2 minor incidents of dactylitis which lasted about 2 weeks each but other than that, she is a normal healthy, busy toddler.

I look forward to sharing with and supporting the other parents in this group.
 

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