We still Hope
Yes our instinct is to protect them and keep them home. My daughter went to the nursery because i had to go back to work. She is now five years old. Very active and healthy, she has the ususal illness of any other disease free children. i donot treat her special, or treat her as if she is sick or be overprotective. She attends regular school but she is taught to wash her hands properly not to eat uncooked meals and also wherever she goes they are appraise of her SCD. She knows why her eyes are jaundiced (yellow) so that when the children ask she can explain. she just brushes them off and say ' I have Sickle cell that is why my eyes are like that". She participates in very activity. What i am saying is that you have to allow to them the freedom to grow and develop and have faith in God. Do the best you can, continue to research and set proper healthy diets. And yes the more they interact with the environment the better their immune system is developed. So let them roam and be free.
Hello am a mother of a 13 year old girl with SCD, my daughter, just like your went daycare and to a regular school and now she is going to high school. she also participates in all activities.
I think thats we as parents of kids with SCD have to treat our children normal, its very important for their self esteem. We got to be causes ofcourse.
I was happy to hear that your daughter explain(when ask) to her schoolmates taht she has SDC. My daughter is going thru a fase, that she rather not mention it to her schoolmates, i dont know if its because she is becoming a teenanger. I have to see how i will deal with this now..
Good luck with your daughter.