Sikcell: People living with Sickle Cell

We still Hope

Ade Dotun's Likes

October 2025

Home My daughter came home yesterday. She is doing a lot better. She is so glad to be home. Thanks everyone for the prayers. Blog Home 1 Like Hospital or Home Do you go to the hospital everytime your in crisis? My daughter has been in crisis for three days, She is eating and drinking, and I am using pain meds to control pain. She says she really dont want… Blog Hospital or Home 1 Like how long does your normal crisis last I was just wondering how long does everybody's crisis normally last. I have seen post where people have said there crisis last for minutes of hours. My daughters crisis lasts for like 4 to 5 days. Is… Blog how long does your normal crisis last 1 Like In crisis on Christmas My daughter is back in the hospital. She started with pain and last night she had a fever. She did get to open her presents but then we had to take her to the hospital. Hopefully she wont be there… Blog In crisis on Christmas 1 Like Where is the majority of your pain

My daughter has the majority of her pain in her legs so it is hard for her to walk when she is in crisis. Does anyone else have this problem, it makes her life very difficult. For the past 2 years…

Blog Where is the majority of your pain 1 Like

September 2023

Remington College Partners with Sickle Cell Disease Association of America for Blood Drives in 2010

Remington College and the Sickle Cell Disease Association of America are partnering for a series…

Blog Remington College Partners with Sickle Cell Disease Association of America for Blood Drives in 2010 1 Like

June 2023

Penn Med SCD Contraception Study

The Women’s Health Clinical Research Center at Penn Medicine is currently recruiting participants with sickle cell disease for a paid study looking at whether participants experience any…

Blog Penn Med SCD Contraception Study 1 Like

April 2023

Stacey

Member Stacey 2 Likes

July 2022

On The Other Side Of Through That's the title of my new Blog Post at my sight....http://1chanceonly-bigdaddy54.blogspot.com/ hope we can get a discussion going about some of this. Maybe it will help someone. Blog On The Other Side Of Through 1 Like Beware of Sedenafil (Revatio) Study for Sickle Cell Halted Don't know if you are familiar with this study on the effects of sedenafil on Pulmonary Hypertension? Pass it… Blog Beware of Sedenafil (Revatio) Study for Sickle Cell Halted 1 Like Some Good Things Turn Our Not So Good I just posted on my site that after my hospital stay a week ago I had to go back to have my Port looked at. Find out what happened and join in on the conversation at the link… Blog Some Good Things Turn Our Not So Good 1 Like Day 5 At Sickle Cell Camp View my blog and you will read about my hospital adventure as well as the Sickle Cell Camp in Los Angeles. Click on the link below.

http://1chanceonly-bigdaddy54.blogspot.com/ Blog Day 5 At Sickle Cell Camp 1 Like How Do I Feel I place a new post on my blog. Since I am recuperating from the hospital, I thought I would talk about this subject. Hope you can join in on my comment… Blog How Do I Feel 1 Like

May 2022

INCESSANT PAIN Hi warriors, I had one of the worst crisis Nov last year and was hospitalised for about a month, ever since I've been experiencing constant pain in most of my joints. I take Pentazocine injection… Blog INCESSANT PAIN 2 Likes

April 2022

My Uncle works with medicines, and helps research treatments and cures....he found this for me... There are two Trials that they are testing on Sickle Cell patients, look them up on Google for more information about these trials, also you can directly contact the investigators by using the phone… Blog My Uncle works with medicines, and helps research treatments and cures....he found this for me... 1 Like Anyone use these products? <a href="https://healingblendsglobal.com/collections/sickle-cell">https://healingblendsglobal.com/collections/sickle-cell</a> Is it good for those with beta thallesmia minor? I gotta fight to move, I tire down very easily... Discussion Anyone use these products? 1 Like All body pain

Have any of you ever had pain in many spots before that made it hard to get out of bed or even just get around your home? I have AVN, RA, and SCD (SS) and yesterday it took me 4 hours to get out…

Blog All body pain 1 Like

March 2022

my daughter Dear All,

I am fairly new to this site. I joined because i have a daughter with sickle cell. she is 10 months old and has had one crisis. It wasn't too severe, we were admitted for one night… Blog my daughter 1 Like

February 2022

what i think.

i think we need a blood count machine of some kind, a hand held something so that we could check our blood count at least once a week because it's not fun going to the hospital and have to wait…

Blog what i think. 3 Likes