We still Hope
Hello. My husband and I just adopted our precious son, Markelle Isaiah, who has SCD, SS. He's 3 weeks old, so he hasn't had any symptoms yet. We didn't know much about SCD until Markelle joined…Blog Worried Mommy 2 Likes The Hibiscus Study The Hibiscus Study™ is inviting adults and adolescents 12 to 65 years old with a clinical diagnosis of sickle cell disease (SCD) to take part in a clinical research study. The primary purpose of the… Discussion The Hibiscus Study 1 Like Sickle Cell Trials for South Florida residen… Hi my name is Rachel I work for a research facility in Miami, Florida. We are very passionate in helping fight the battle against SCD. The current trials are as follows: Duration: 14 weeks Inclusion… Discussion Sickle Cell Trials for South Florida residen… 1 Like
Currently, there are a few different clinical studies for sickle cell disease. Must live in South Florida. To prequalify or to receive more info go to …Blog Sickle Cell Studies in Miami, Florida 1 Like
I am 30 years old now and it seems like I'm in the hospital every other month. In my teens and twenties I was great, virtually now problems and no hospital visits! Now, I'm a mother of 2 and…Blog Seems like my health is getting worse with ag 1 Like Help! Advice wanted!
My 13 months old was diagnosed with SC last week. I am reading and learning as this is all new to me. I would appreciate any advice regarding nutrition, medication etc. Drs prescribed daily…Blog Help! Advice wanted! 1 Like Spleen Sequestration.. is there a way to reve Hello, im new here and hope i can find help. my child is sickle cell diseased. he is my only child so far. he developed a spleen sequestration at 12 months then again another one at 15 months (last… Blog Spleen Sequestration.. is there a way to reve 1 Like Chronic Pain.
I am a 26 yr. old female living with SCD (SS). I have read many things on Type (SS) being most common and most severe form of sickle. For the past 3 almost 4 months to this day, I have had crisis…Blog Chronic Pain. 1 Like uhhmmmmm... hey? Sup, i dont usually blog but i guess ill atleast tell u bout myself. Im 19, currently goin to ITT Tech for associates in visual communications, Im a real laid back person, it takes alot...ALOOOOOOT… Blog uhhmmmmm... hey? 1 Like This stupid disease Hi everyone, I am Nikki I am new to this. I have hgb SS. I am a 36 year old female. Ihave had 4 strokes, and I have CHF and have compression fractures in my back. I live in the Washington DC metro… Blog This stupid disease 1 Like