All Blog Posts (292)

Hello Friends

Hi everyone, this is Rotex. I am 39 years old. I was diagnosed of sickle cell at age 2 and since then i have been lucky to be alive till now. I have suffered uncountable crises moments. God has been faithful. I am here to learn and share as well. Hope you`ll be there for me. I am married with a Son (7) since 1999. Looking forward to making new friends. Regards

Added by Rotimi on March 25, 2009 at 12:12pm — 2 Comments

wife of sickle cell patient

Hello Warriors, my name is Chevi and my husband has sickle cell disease. I think it is really important to have this kind of support system. recently read an article on the internet by Dr. Oji Agbai. In the article the good doctor states that as a result of extensive research, he has discovered that patients whose diet consists of foods containing the chemical Thiocyanate had fewer crisis. In short this chemical reduced the sickling of the red blood cells. foods such as cassavas and yams… Continue

Added by chevi on March 18, 2009 at 10:27pm — 3 Comments

Looking for a good doctor that provides treatment for sickle beta thalessima

Hi Everyone!

I am new to the blog and am grateful to find others out there like me who have a form of sickle cell. I am currently residing in Minot North Dakota and am eagerly seeking a good doctor that provides treatment for sickle beta thalessima. I will be undergoing a vitrectomy within the next 2 weeks to repair a significant tear in my retina. If anyone can give me leads on a good medical provider I welcome such.

Thank you!

Monica

Added by Monica on February 23, 2009 at 10:09pm — 2 Comments

Minority Nurse Article

Hey everyone,



I just got featured in this month's issue of Minority Nurse magazine. The tile is "Providing Culturally Competent Care for Sickle Cell Patients". The author interviewed me and used some of my responses in the article.



Not only that but it's an excellent article that helps to educate the public and medical professionals about the problems sickle cell patients constantly have to fight. If you have a moment, check it out… Continue

Added by Sickle Cell Warrior on January 29, 2009 at 9:51am — 1 Comment

Me

Hello my name is Tawanda, I just came across this site from veiwing someones myspace page. I have Sickle Cell Disease. Me myself I dont't take any medicine for my disease except folic acid and pain miedicine. I do attend a Sickle Cell clinic in chicago, but sometimes I feel the doctors are basically guessing on what medicines to give me anyhow. It can be hard going through the pain and feeling like no one understands. That one of my main reason for being on this site and hopefull to get some… Continue

Added by Ms. Wugga on January 23, 2009 at 2:55pm — 2 Comments

Hello

Just wanted to introduce myself....My name is Audrey...My two daughters have been diagnosed with Sickle Cell Disease...Wonderful meeting u all....

Added by Nina R=Audrey on January 13, 2009 at 8:55am — 4 Comments

Children's Nicosan - what age??

At what age can children start taking Nicosan?

Added by iysha on January 9, 2009 at 12:13pm — 3 Comments

Beware of Lawyers for Sickle Cell Disease

Question: Would you allow lawyers to represent you in a legal case of prenatal misdiagnosis and wrongful birht of a sickle cell child?

The assumption here is that the prospective parents are not aware of "sickle cell disease" or thier chance of passing this to thier offspring. In addition, the healthcare provider did not tell them about it or test for SCD prenatally or post-natally. You can follow this… Continue

Added by DrD on January 3, 2009 at 9:41pm — No Comments

HYDROXYUREA

I REALLY DONT GET THE WHOLE HYDROXYUREA CAUSE I'VE BEEN ON IT FOR ABOUT 4 YEARS ON AND OFF BUT I DONT SEE ANY IN PROVEMENT CAUSE I'M STILL IN THE ER ABOUT 3 TO 4 TIMES A MONTH ANS ADMITED IN THE HOSPITAL ALOT NOW I FEEL LIKE AN WALKING MEDICAL CABINET I HAVE MORE AND MORE HEALTH PROBLEMS THEN ALIITLE BITE EVEN NOW I CAT FIND A PAIN PILL TO KILL THE PAIN THEY ALL FEEL FAKE TO ME . BUT IF YOU TAKE HYDROXYUREA CAN YOU TELL ME WHAT IT DOES FOR YOU AND WHAT OUTHINK ABOUT IT

Added by MS.KNIGHT on December 19, 2008 at 10:02pm — 6 Comments

Check out my blog!!!

lmao everyone has blogs!! just check it out, i think you'll like it! http://shawneeosborne.blogspot.com/

Added by *Shawnii* on December 15, 2008 at 8:37pm — 1 Comment

Sickle Cell Can Kiss my A$$!!

Check out my full blog on Blogger. This blog chronicles the wonderful, poignant and fun filled days of living, loving and surviving with sickle cell anemia. My illness does not define me---I define my illness. This is my story!

http://sicklecellblog.blogspot.com

Added by Sickle Cell Warrior on December 13, 2008 at 4:48am — No Comments

Check out my blog!

WWW.WURRD.COM

Added by Bukky Ade on October 28, 2008 at 10:49pm — 2 Comments

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