Sikcell: People living with Sickle Cell

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HYDROXYUREA

I REALLY DONT GET THE WHOLE HYDROXYUREA CAUSE I'VE BEEN ON IT FOR ABOUT 4 YEARS ON AND OFF BUT I DONT SEE ANY IN PROVEMENT CAUSE I'M STILL IN THE ER ABOUT 3 TO 4 TIMES A MONTH ANS ADMITED IN THE HOSPITAL ALOT NOW I FEEL LIKE AN WALKING MEDICAL CABINET I HAVE MORE AND MORE HEALTH PROBLEMS THEN ALIITLE BITE EVEN NOW I CAT FIND A PAIN PILL TO KILL THE PAIN THEY ALL FEEL FAKE TO ME . BUT IF YOU TAKE HYDROXYUREA CAN YOU TELL ME WHAT IT DOES FOR YOU AND WHAT OUTHINK ABOUT IT

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Comment by Ade Dotun on February 19, 2009 at 3:48pm: i just started taking Hydroxyurea last month and i haven't noticed any side effects, so far so good, i think it has different effect on different people.

Comment by DrD on January 3, 2009 at 11:21pm: Click here for a review of a recent paper on hydroxurea.
Those of you who are on Nicosan can help us by documenting how well it is helping you. The side effects if any. That way more experience and confidence can be gained.

Comment by Sickle Cell Warrior on December 23, 2008 at 8:07am: LOL...Angela...that's the same thing my dumb hematologist said, but I ignored him and started Nicosan anyway. Your doc can't legally advise you to take an herbal remedy...he has to cover his ass in case you come around and sue him. But he's not the one dealing with this disease...u are! Hydrea is crap, the side effects aren't even worth the cure, and it's not as effective. I've been 8 months pain free...no crises at all, and can't even remember the last time I was sick.

Comment by Bukky Ade on December 22, 2008 at 9:20pm: I just got mine in today. so I cant wait to see how it works.
ITS NOT TOO expensive for meds + oversees shipping
the drug its self is $35 and shipping is $15 total = $50

Comment by *Shawnii* on December 20, 2008 at 3:14am: i heard nicosan works miracles!!! and if reduces ur crisis by 85%....i want to start taking them as well but i would have to order then from overseas which is expensive but so are hospital bills...lol

Comment by Bukky Ade on December 19, 2008 at 11:29pm: I dont take hydrea(for short) but i was supposed to
the reason I dnt take it is cause it has too many negatives (possible side effects etc) and not enough good things that are supposed to happen.

But what it does is that it makes hemoglobin F in your body, which is what babies make before they are born. The the H*F is suppsed to chnage to H*A. so you would have less Sickled cells.

here are some other drugs your doc may not know about but do help ppl wit SCD. You can google them and see if you want to try them out.

Nicosan*this is the one I'm trying out
Joblyn