Sikcell: People living with Sickle Cell

We still Hope

This blog is to tell you a little bit about myself and my daughter Kennedy. Kennedy is 2 years old she has sickle cell SS. I'm up here to talk to people that need someone to talk to and also to hea…

This blog is to tell you a little bit about myself and my daughter Kennedy.

Kennedy is 2 years old she has sickle cell SS. I'm up here to talk to people that need someone to talk to and also to hear other people stories. I take Sickle Cell very serious.I educate parents that kids has sickle cell to keep them on the right path. Because you can't do it alone you will need a good support system and that's why im here to be there for anyone in need. I also donate to the children's Hospital cloths,toys,books and etc.....and I do it for free not a tax write off. Also I volunteer at children's hospital every Christmas to just talk to the parents to make them feel comfortable while they are there at the hopital because that was me a few years ago so i can related.

My name is Kenyona im 28 years old thank god Kennedy Dad and I are still together and taking this journey together he also know alot about sickle cell now as well he's my bakdone because sometime i could feel like breaking down because as a mother I hate to see my baby go thru the pain. But Kennedy is on amazing strong smart very intelligent little girl and I'm proud and blessed to be her mother....

Signed Pluck sicklecell :)

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Comment by Tabo mubemba on May 7, 2013 at 9:57am: very encouraging words, my daughter has sickle cell she is turning 5 this month and its really haert warming to hear such story and realise we are not alone in this fight

Comment by Jayel.K on May 2, 2013 at 10:55am: Hello Kenyona's mom,

Im very touched by your words. And im sure that your girl will be very proud of you when she get older. I've got sickle cell ss too and i know how much its difficult to us to see the sadness and and the pain in our parents eyes.

You're doing a wonderful work by being proactive around you. Well done.

Ps: Sorry about my english and some mistake( faults) but im a french speaker.

Comment by Ade Dotun on April 23, 2013 at 6:18pm: Glad to hear u are so proactive about educating people about SS. U are great mother, we need more people like you. Stay strong!