Check out my latest blog about the subject of Sickle Cell Cure....Is it true?  Is it permanent?.....who knows????

Once more and again... Sickle Cell can be controlled with NATURAL remedies but our FDA want to label them as UNSAFE and LIMIT your RIGHT to use them!

  ASK YOURSELF WHY!?…

Singer Celine Dion gave a concert in Las Vegas, Nevada for Children's Hospital Boston "Play Without Pain" Sickle Cell Disease Fundraiser. Read more at Our Voice.

She raised over $6 million for children with SCD!!!!!!…

Hello everyone..I am a parent of a 17 year old son with SCD type SS. He has had a fairly healthy life thus far. He has had his gall bladder removed, pnuemonia twice and two pain crisis in his life. First, I want to thank god for his health thus far and moving foward. I had a question for the younger men and women who suffer from this disease. My son has applied to several different colleges to include a college in GA. I currently live in NC and his father is currently in the military in…

2012

Hey Everyone, let's ask our friends, co-workers, and church, or whomever we know to donate blood....or organize a blood drive to support sickle cell awareness....AND blood bank supplies.

We may not be able to do much, (if we're sick) but we can ask for…

I have Avascular Necrosis of both Hips and Rheumatiod Arthiritis in my right elbow (I'm right handed so this effects me a great deal) and left knee and Sickle Cell SS. I have been to many doctors and specialist. I have had two surgeries in three months and I might need another one. I'm also on a butt load of medications. I do what I can to keep going but the pain NEVER goes away. Constant back and hip pain all the time. Did I forget to mention that in February I lost feeling in my lower face…

Iron Overload  (IO) is a big deal and can cause life threatening complications. Find out more at Our Voice and get transfusion smart.

Hey fam know its been awhile but I need some advice from those who go through the same things I do.  So here is the problem this guy that I have been dating for awhile long distance think its time we take  it to moving in together but not in another state where he has a new job.  I told him that this is a big step but I have a hard time dealing with uprooting having to find a GOOD set of doctors and all that comes with moving is very stressful.  I know what triggers me into crisis the…

i think we need a blood count machine of some kind, a hand held something so that we could check our blood count at least once a week because it's not fun going to the hospital and have to wait hours for your blood results.

Check out OUR VOICE

about our need for oxygen when we travel by air.

Sickle Cell Pain Survey 

Are you interested in lending your face to a photo exhibit of people living with sickle cell?  Check out my blog http://sicklecell-ourvoice.blogspot.com/ and see how you can be included

Faces of Sickle Cell.

Martin Luther King said, "We begin to die the moment we become silent about things that matter."  THIS MATTERS

Check it…

Dr. Oz didn't realize how much people suffer in pain. Check out my latest blog post and see how he's bring new awareness:  Our Voice Dr. Oz Article

Just wanted to say Hello, hang on and never give up!... "A change is gonna come"

Hey everyone,

I got an email from Urevbu Foundation about a clinical trial being held by the University of Memphis. It is a nutrition study related to hypertention and leg ulcers.  If you live in the Memphis, TN area you may be interested.

See info below:

 SICKLE CELL NUTRITION STUDY                                                         

Low nitric oxide in people…

Hey guys

I hope all is well with you.

I write a blog and am asking some people who graduated from college and people who are currently in college advice on college life. So I figured I would ask you guys since you're like another type of family/ community.

Ive been hospital free for 2 years ^_^ but I had a mini crisis this week. I almost forgot how bad it was to be in pain. Its soo annoying just having to put your life on hold. And it got me down a…

According to American Pain Foundation there has been a "voluntary pain medication recall" for mis-labeling.



They say:



"Endo Pharmaceuticals, Inc., and Qualitest, a generic drug manufacturing subsidiary, issued voluntary recalls on June 27, 2011 for certain lots of oxycodone with acetaminophen (Endocet), hydrocodone with acetaminophen…