Hi Everyone,

So sorry beeing away for so long. In fact it has been quite a while since I came here. Shamefull....

Yes, the reality of dealing with sickle cell just came to me as hard as it could. My son, who was crisis free until the age of 4, had a acute stroke 3 weeks after his 4th birthday. It was devastating and to make things even more painful, 6 months later he had the second one. We are worrking to have him a bone marrow transplant as quickly as we possivble can now,…

This was first a reply to Sandra's post "Silent Suffering" but decided to have it as a Blog, hope it helps someone......

I just discovered this herb on my last trip home to Africa thanks to my mother (Yes my mom is still much around at almost 80 and strong lol), who really believes in herbs, apparently its been around for a while and its well know its a plant called "Moringa Oleifera" (the "Miracle Tree) it only grows in Africa some parts of South America and India. While I was home I…

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and by the way.....what are you doing this year?

Hello all,

Just to get some convo going, Please share with the community what your average day is like and what your favorite part of the day is. For me its when i leave work n land on my bed

I am a 26 yr. old female living with SCD (SS). I have read many things on Type (SS) being most common and most severe form of sickle. For the past 3 almost 4 months to this day, I have had crisis nearly every day. I can probably only tell you about 3-4 days I was pain free. I have plowed through so many pain pills and I ended up in the ER once. Because I work full time, 40 hrs a week and I’m in school 3 hours a day, I am always on the go, so I try my best to push through the pain and get on…

Hello. My husband and I just adopted our precious son, Markelle Isaiah, who has SCD, SS.  He's 3 weeks old, so he hasn't had any symptoms yet.   We didn't know much about SCD until Markelle joined our family, but we've done tons of research and get the basics of the disease.  More than anything I would love to connect with people who are actually living with SCD and tips from parents of SS children.  I'm feeling a little lost.  Thanks, Erika

This blog is to tell you a little bit about myself and my daughter Kennedy.

Kennedy is 2 years old she has sickle cell SS. I'm up here to talk to people that need someone to talk to and also to hear other people stories. I take Sickle Cell very serious.I educate parents that kids has sickle cell to keep them on the right path. Because you can't do it alone you…

I now work for an holistic healer, Advance Massage Therapy, with regular massage I still get stress and the body still aches but a co-worker of mine gave me some Himalayan Pink Salt. They relaxed me and eased my mind and body, I sleep so well that night. So if you like to soak or just need to try something, pick some up. I try…

Costa Rica.....really? Yes, OUR VOICE examines one group whose helping people with sickle cell disease in this Central American country. 

Visit OUR VOICE to learn…

Ge t information about web seminars for sickle cell disease our world-wide source for information. 

CDC Sickle Cell Information Center  Important seminars coming…

Few days till my transfusion, I'm so tired i just want to sleep and I've been having small crisis everyday in my low back, I've started to take too many pain killers so I've tried warm bath soaks and heat packs any other suggestions anyone?  

Need Help , Hello Guys I am Suffering from Sickel B thal , i was not knowing that this is the bigest Deases. in Feb 2010 i married to a girl , i did updated that i have blood cell issue , however as per our mutual undersatnding our family has kept our Marriage with all Hindu cermny on 28th MAy 2010, on 15th MAy 2010 i fall seek , i asked my wife to go for chek up, she took me with her Sister inlaw and she did all the report, i was asking about the report and she was saying all is well . on…

I have found this website to help me and other to find healthy alterative for eating to cut back on crisis and other issue related to SCD.

http://www.livestrong.com/article/283869-sickle-cell-diet/

I have been having weird chest pains starting a few months after my new exchange port was put in, around a year ago. The pain was very mild and only happen if I over did it, sneezed hard, had a cough or trouble breathing. It’s about the middle of my chest and ribs right around the sternum. I have had an EKG and x-rays but nothing explains the pain getting worse and more frequent. I thought it could have been bad placement with my port but that does not seem to be the case either. It has been…