We still Hope
I am a 26 yr. old female living with SCD (SS). I have read many things on Type (SS) being most common and most severe form of sickle. For the past 3 almost 4 months to this day, I have had crisis nearly every day. I can probably only tell you about 3-4 days I was pain free. I have plowed through so many pain pills and I ended up in the ER once. Because I work full time, 40 hrs a week and I’m in school 3 hours a day, I am always on the go, so I try my best to push through the pain and get on with the day. I have been told many times I over work myself. But if I don’t do it, it will not get done. I was diagnosed at the age of 3 yrs but my parents knew I had (SS) around the time of birth. I was diagnoses with (RA), Rheumatoid Arthritis in both my arms and legs just around my 21st birthday. And the summer of my 23rd birthday I was told I had (AVN) Avascular Necrosis in both of my hips. I have had many procedures to help, but the treatments have only been temporary. It seems to get worse for me with age. I have 3 brothers and 2 sisters none of which have the disease and only one of each are full blood that carry they trait. We have looked into Bone Marrow Transplant and even saving my full blood sisters placenta and cord blood from all 3 pregnancies but the doctors have not found something that my body will accept. I have been able to rid my body of most common toxic medications and I’m only taking Hydroxyurea and Folic Acid for my SS and Methotrexate for my RA. I take over the counter Vitamins like E, D, B and Mega Reds as well. I am more into holistic healing so I Meditate, low exercise, on a strict diet and only drink water with occasional Herbal Teas, Natural Juices and Milk. I still have not been able to control my pain and even with meds, it’s just masked, never fully gone. I’m here seeking advice from anyone who understands this feeling, has anyone ever been in this much pain or even in pain this long? Does anyone have any suggestions? Does anyone have as much trouble as I do just doing daily things that others take for granted? Like getting up and ready in the morning or even just walking from your car to work or to class. My doctors are worried I have so much pain and not sure why I hurt ALL the time. My guess was that’s just the definition of Chronic Pain.