Clinical Trial of Vaporized CANNABIS for

Chronic Pain Caused By Sickle Cell Disease

This UCSF study at San Francisco General Hospital (SFGH) will evaluate whether using vaporized cannabis reduces pain in people who are taking opioid medications for chronic pain associated with sickle cell disease.

TO JOIN THIS STUDY YOU MUST:

• Have a diagnosis of sickle cell…

Have any of you ever had pain in many spots before that made it hard to get out of bed or even just get around your home? I have AVN, RA, and SCD (SS) and yesterday it took me 4 hours to get out of bed and when I finally did I just wanted to get back in bed. I tried going out with my brother and his new wife with my bf on our usual date night, but by the end of the night I couldn't even stand up. It took me 30 min to walk to the car that was parked 2 blocks away and then I had to be carried…

I am a 26 yr. old female living with SCD (SS). I have read many things on Type (SS) being most common and most severe form of sickle. For the past 3 almost 4 months to this day, I have had crisis nearly every day. I can probably only tell you about 3-4 days I was pain free. I have plowed through so many pain pills and I ended up in the ER once. Because I work full time, 40 hrs a week and I’m in school 3 hours a day, I am always on the go, so I try my best to push through the pain and get on…

I now work for an holistic healer, Advance Massage Therapy, with regular massage I still get stress and the body still aches but a co-worker of mine gave me some Himalayan Pink Salt. They relaxed me and eased my mind and body, I sleep so well that night. So if you like to soak or just need to try something, pick some up. I try…

Few days till my transfusion, I'm so tired i just want to sleep and I've been having small crisis everyday in my low back, I've started to take too many pain killers so I've tried warm bath soaks and heat packs any other suggestions anyone?  

I have found this website to help me and other to find healthy alterative for eating to cut back on crisis and other issue related to SCD.

http://www.livestrong.com/article/283869-sickle-cell-diet/

I have been having weird chest pains starting a few months after my new exchange port was put in, around a year ago. The pain was very mild and only happen if I over did it, sneezed hard, had a cough or trouble breathing. It’s about the middle of my chest and ribs right around the sternum. I have had an EKG and x-rays but nothing explains the pain getting worse and more frequent. I thought it could have been bad placement with my port but that does not seem to be the case either. It has been…

I have been able to get off all medication and now only take Hydroxyurea for my SCD, Methotrexate for my RA. With monthly transfusion. I take over the counter vitamins like C,D, and E as well as Fish Oil. I no longer need Dilaudid for pain and only take Hyrocodon-Acetaminophen AKA Vicodin for any pain. I do smoke Gods meds and that helps with stress and depression. Since my surgery i have been greatful and blessed. Though health problems still come my way I am now conciders class 2…

I have Avascular Necrosis of both Hips and Rheumatiod Arthiritis in my right elbow (I'm right handed so this effects me a great deal) and left knee and Sickle Cell SS. I have been to many doctors and specialist. I have had two surgeries in three months and I might need another one. I'm also on a butt load of medications. I do what I can to keep going but the pain NEVER goes away. Constant back and hip pain all the time. Did I forget to mention that in February I lost feeling in my lower face…

I am a 24 year old African American/ Creole Women living in Sonoma County. I was diagnosed with SCD when I was 3 years old. I live with my mother and father still because my health has been on the down turn ever since I was diagnose with RA (rheumatoid Arthritis) last fall 2010. I have 2 sister and 3 brother one of my brother has the trait and one of my sister has the trait but I was the lucky one to get SCD not just SCD but SS trait. Not SC or SA, SS the worse one, or so I have been told. I…