Then Came the reality check....

Hi Everyone,

So sorry beeing away for so long. In fact it has been quite a while since I came here. Shamefull....

Yes, the reality of dealing with sickle cell just came to me as hard as it could. My son, who was crisis free until the age of 4, had a acute stroke 3 weeks after his 4th birthday. It was devastating and to make things even more painful, 6 months later he had the second one. We are worrking to have him a bone marrow transplant as quickly as we possivble can now, because he is already on blood transfusion regiment and it scares me to death. The transplant docs said they are ok with the transfusion for a short period of time, since many transfusions can be a problem on the transplant, many patients that didn't engraftef was because of the variety and mix-matches of the blood transfusions.

Please, check my son Caesar Sant in Youtube, and help us out.

We are currently running a campaign at http://bonemarrow.org/financial-assistance/one-to-one-funds/partici... 

and 

http://www.gofundme.com/You-can-help-Caesar-Sant

Please check the links below to learn more about Caesar and ways to help him to fight his disorder.

Also you can follow us on Facebook: https://www.facebook.com/pages/Caesar-Sant/592087044136325


Hope everyone is doing good!!!!!

Thank you!!!!!!

God Blees you all.

Here is CAesar playing the USA National Anthem at the Grasshoppers Baseball Game last month

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Comment by Nina on July 9, 2013 at 10:50pm

Thank you Ade. It has been very hard to keep on, but I try to get strenght from my kids.

Comment by Ade Dotun on July 9, 2013 at 8:59pm

am so sorry and heart broken to hear that, i will spread the word as much as i can n provide any help i can to help with this. keep doing what you are doing, u are a great mother! stay strong and god bless

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