Sikcell: People living with Sickle Cell

We still Hope

All Blog Posts (292)

Something 2 Think About

The French writer Montaigne said, "The most uncouth of our afflictions is to despise our being." Sometimes we let it slip by us to not allow our high standards to defeat us! For what spurs you to great heights can also paralyze you if you're not careful. How many of us have allowed ourselves to fall into this trap? I know that I have...plenty of times.

Added by LaRhonda Hart on October 12, 2009 at 12:59pm — No Comments

I HOPE EVERYONE IS DOING WELL

I JUST WANTED TO SAY I HOPE EVERYONE IS DOING WELL WITH THERE HEALTH AND HAVE A GOOD WEEKEND WITH FAMILY AND FRIENDS.

Added by etta on October 9, 2009 at 12:50pm — 1 Comment

Researchers Find Key To Keeping Cells In Shape

ScienceDaily (Aug. 17, 2009) — Yale University researchers have discovered how a protein within most cell membranes helps maintain normal cell size, a breakthrough in basic biology that has implications for a variety of diseases such as sickle cell anemia and disorders of the nervous system.

Check it out here!!!! http://www.sciencedaily.com/releases/2009/08/090806121752.htm#

Added by Mr.JAH on October 8, 2009 at 2:51pm — 2 Comments

Sitting Here

I am sitting here feeling defeated. I have just come home from the hospital on Sunday and I am still in pain. I hate to go back but I feel there is no option. I have taken the pain meds they gave me to no avail. My dilemma I have a three year old who I have sitting in front of the tv because mommy cant play with him. I feel like I am becoming depressed and I see how this disease can affect you mentally. I really hate going back to the er because they will look at me funny and say oh your back… Continue

Added by Tiffany J. White on October 6, 2009 at 11:01am — 2 Comments

Vicodin

I was feeling really bad last nite and decided to take a vicodin. I have taken Vicodin before it is usually very effective but last nite I had severe stomach pain and was severely nauseous. The Vicodin also made me dizzy. Has anyone experienced this from Vicodin before even if you have taken it before and it worked? I am now also afraid to take Vicodin again, any suggestion on pain aid? I have taken Tylenol #3 and percocet neither was as effective as Vicodin.

Added by Trish on October 5, 2009 at 8:20pm — 4 Comments

Flu Shots and Sickle Cell

Can anybody tell me if they have had any bad side effects because of the flu shots and u having sickle cell.My baby just recieved hers for the first time and she still seems to be achy without a fever.What signs should I also be concerned about because I dont want to take her to the hospitalif I dont have to because she might get worst!

Added by NICHOLE on October 5, 2009 at 7:24pm — 4 Comments

Depression and sickle cell

Hello im amoree and I do not know if it is just me or not but I have been through depression alot in my life and I dont know if it was because of my sickle cell and if any one else had the same feelings that I had it started when I was 12 and they started giveing me meds for my depression and it seem to help and now im 17 and it seem that all the feelings are comeing I just dont seem to be me anymore and lately I have been in alot of pain and I have been in the hospital and its like when im in… Continue

Added by amoree on October 2, 2009 at 10:32am — 4 Comments

Sickle Cell Clinical Trials

I would like to know if any SCD member of this site has ever participated in a SCD clinical trial. If so, what was the trial; what phase was the trial in, and what was your experience. Also, if you have never participated or inquired about a clinical trial, the please share your reason(s) why?

I ask this question because I have a baby girl due in Nov. and my husband and I found out during my 5th month that she will have SCD. I’ll have to post a blog about that whole ordeal some other… Continue

Added by Ava Grace on October 1, 2009 at 10:21am — No Comments

Need encouragement to not give up, This was my blast

Hey PLWSC,

Just wanted to share. I changed the first thing I typed after joining the group. Felt so defeated when I came to this site. I was failing and could not see a resolution. I had been sick.. again (not..again). And was pretty mad at the world, because frankly, it did not work into my praticulum of projects and had going. What do you do?

Enough about me, let's talk about the successful people I have found as members on the site! Giving advice, sharing with one… Continue

Added by Novella M Kourouma on September 30, 2009 at 11:00pm — 3 Comments

My daily meds...

 OsteoPhase & Herbal Boost- Natural way to build bones and damaged tissues / celluar energy production
 Hemoxide & Rejuvin- Improves blood circulation, opens up the walls of the arteries, immune booster, regenerate cells, pain reducer
 Marijuana- Natural way to reduce pain (avoid prescription drugs)

Added by Mr.JAH on September 30, 2009 at 6:25pm — 1 Comment

New Site, New Movement, Get On Board!

Hey all! Check out the fan page below on facebook for a really exciting project being produced about Sickle Cell Disease. Get Informed, Get Inspired, Get Empowered, Get Involved!

Check back often if you want to participate in an innovative and empowering movement!

Project Hemoglobin S Fan page on Facebook!
http://www.facebook.com/home.php?filter=pp#/pages/Project-Hemoglobin-S/136802918724?ref=nf

Added by Keda B. Reel on September 30, 2009 at 2:01pm — 2 Comments

Feeling Like Crap!

I'm so tired dis morning, I could hardly get up and get my boys ready for school. My Grandma used to say I got tired blood....I use to always think that if I get to bed by maybe 9 or 10 I would be ok in the morning, that theory has long be unapproved. I take one a day and folic acid for some type of energy and yet I'm still unbelievably tired most of the times. I don't drink caffeine becuz I suffer from migraine so that is out of the question. Do anyone else have this problem and do anyone have… Continue

Added by Trish on September 25, 2009 at 8:38am — 7 Comments

My Life with Sickle Cell Disease

I have started a daily blog about my life, check it out at:

http://livingwithsicklecelldisease.blogspot.com/

Added by Lily C. on September 24, 2009 at 1:06am — 2 Comments

How to assist a friend with Sickle Cell

Hi, I have a female friend with Sickle Cell. She goes in and out of the hospital several times per year. She has a good support system. She has a college education, a full time job and she is a single parent of 2 children. The problem is that every time she goes into the hospital she gets behind on her bills because "she makes too much $ for any type of public assistance." Does any one know of temporary assistance for cases like this? She is wants to be able to work and take care of her… Continue

Added by Carmen on September 23, 2009 at 10:07pm — 2 Comments

Blood Count

I was in the hematologist/oncologist office the other day and over heard the nurse telling a cancer patient about her blood count and it was much higher than mine. I understand cancer is a big deal as a matter of fact I have an aunt that's dying of cancer as we speak but if a cancer patient's count is much higher than mine than when are they going to start to believe that SCD is a deadly disease and deserves as much research as cancer. I hope I haven't offended anyone. It just gets frustrating… Continue

Added by Trish on September 23, 2009 at 12:35am — 7 Comments

A heartwrenching article:A 100+years of sickle cell and we still have problems

I want to post this article that I came across and I think we all need to be concerned.Is it just me or does this mean that we as parents and people that are suffering from sickle cell are still secretly ignored and what more do we need to do so that we are heard.I was not worried about the health care reform bill until I read this article!It is long but u have to read the whole… Continue

Added by NICHOLE on September 22, 2009 at 11:30pm — No Comments

True Life ---I Have Sickle Cell

Hey all, i got this from sickle cell warriors blog, yal should def check her blog

Hey guys, MTV's True Life is doing a story on " I have a life altering ailment or illness." If you are interested getting our story out there then you need to send an e-mail to seriousillness@mtvn.com. You should include your name, location, phone...etc. Let's make sickle cell known to the folks at MTV~!

Added by Ade Dotun on September 21, 2009 at 7:24pm — 5 Comments

True Life- I have sickle cell

I dont know if Sickle Cell Warroir has already put this up but MTV's True Life is doing a story on " I have a life altering ailment or illness." If you are interested getting our story out there then you need to send an e-mail to seriousillness@mtvn.com. You should include your name, location, phone...etc. Let's make sickle cell known to the folks at MTV~!

Added by Bukky Ade on September 21, 2009 at 6:47pm — No Comments

NCAA's sickle cell test plan raises fears

I found an interesting article regarding the national collegiate athletic assoc screening college athletes for sickle cell trait...... let me know what you think.

http://www.sfgate.com/cgi-bin/article.cgi?f=/c/a/2009/09/14/MN2P19LCJM.DTL…

Continue

Added by Tracy H. on September 16, 2009 at 8:30pm — 2 Comments

Cure Research

I was wondering what the latest research is on the treatment for sickle cell anemia. Has there been any discoveries in being closer to a cure? -Adriana

Added by Adriana Jade on September 12, 2009 at 12:00am — 2 Comments