I want to post this article that I came across and I think we all need to be concerned.Is it just me or does this mean that we as parents and people that are suffering from sickle cell are still secretly ignored and what more do we need to do so that we are heard.I was not worried about the health care reform bill until I read this article!It is long but u have to read the whole thing.http://www.healthbeatblog.com/2009/09/do-you-remember-sickle-cell-disease-we-helped-children-now-were-letting-young-adults-suffer.html