Today me and my family entered a study conducted at NIH on stem cell research.We have a 20 month old baby with Sickle Cell SS and we currently are expecting a baby in February that we dont know the status on as of yet!Since this is a network dedicated to people with Sickle Cell I would like any input on what u think about Stem Cell Research and the ways that it can cure this disease.I would also like to know if anyone has ever met anyone that has considered having it done or has had this done… Continue

Can anybody tell me if they have had any bad side effects because of the flu shots and u having sickle cell.My baby just recieved hers for the first time and she still seems to be achy without a fever.What signs should I also be concerned about because I dont want to take her to the hospitalif I dont have to because she might get worst!

I want to post this article that I came across and I think we all need to be concerned.Is it just me or does this mean that we as parents and people that are suffering from sickle cell are still secretly ignored and what more do we need to do so that we are heard.I was not worried about the health care reform bill until I read this article!It is long but u have to read the whole… Continue