Today me and my family entered a study conducted at NIH on stem cell research.We have a 20 month old baby with Sickle Cell SS and we currently are expecting a baby in February that we dont know the status on as of yet!Since this is a network dedicated to people with Sickle Cell I would like any input on what u think about Stem Cell Research and the ways that it can cure this disease.I would also like to know if anyone has ever met anyone that has considered having it done or has had this done .Thank U!

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Comment by NICHOLE on December 3, 2009 at 11:38am
Thanks to anyone who replied to this post! I only have 2 long months to go and than I will be able to write and give all of the details!
Comment by Patricia Chibanda on December 3, 2009 at 3:02am
I have a five year old boy who is ss and im desperately trying to fimnd a solution so i pray that this works for your baby and all of us who will try. Thanx for sharing
Comment by rachael boly on November 13, 2009 at 12:54pm
Hi nichole i have thought of all options posible and still struggling; BMT, stem cell you name it. It is unclear since it is still research. I have a 15 month old with SS and i would like to meet and talk with people who hav ethe same.

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