Sikcell: People living with Sickle Cell

We still Hope

Sitting Here

I am sitting here feeling defeated. I have just come home from the hospital on Sunday and I am still in pain. I hate to go back but I feel there is no option. I have taken the pain meds they gave me to no avail. My dilemma I have a three year old who I have sitting in front of the tv because mommy cant play with him. I feel like I am becoming depressed and I see how this disease can affect you mentally. I really hate going back to the er because they will look at me funny and say oh your back again. I need another way. If anyone has any suggestions and ideas let me know.

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Comment by Jason Bioba Goldie on October 13, 2009 at 1:05pm: I wish I could say take this or that: I don’t know much about drugs except my vitamins, folic acid, lots of water, lots of rest and tuning in to God if ever I get depressed over issues concerning my health (presently pressures about getting married from friends that do not really understand). Most times I don’t like sounding too spiritual about being ‘SS’ (not secret service) but it is the only way I have come to live with it successfully. I want you to be in good health, especially for your child.
Just learn to be cheerful even when there is no need for it: I will pray for you right now.
Jason.

Comment by Tracy H. on October 7, 2009 at 2:03am: Tiffany, try not to feel defeated.. I know that is easier said than done, but you must take control and be pain-free. If the pain killers are not working, go back to the ER. Hospital staff can be cruel, unfair and very ignorant towards us; but you must let your feeling be known. Tell the doctor that you need something stronger or a different medication. I know all too well that waiting in the ER is not fun, nor is the lingering pain that stubbornly take forever to go. However you can not remain in pain, don't allow SCD to defeat you. Stay strong and you will soon be able to play with your little boy.

Infusion centers are another way. This are places we can go for pain management without the confusion and prolonged waiting like the emergency room. The only thing is finding one close to you. Do you live in Freeport LI? If so, research if any of the LIJ hospitals have one.