Sikcell: People living with Sickle Cell

We still Hope

September 2009 Blog Posts (15)

Need encouragement to not give up, This was my blast

Hey PLWSC,

Just wanted to share. I changed the first thing I typed after joining the group. Felt so defeated when I came to this site. I was failing and could not see a resolution. I had been sick.. again (not..again). And was pretty mad at the world, because frankly, it did not work into my praticulum of projects and had going. What do you do?

Enough about me, let's talk about the successful people I have found as members on the site! Giving advice, sharing with one… Continue

Added by Novella M Kourouma on September 30, 2009 at 11:00pm — 3 Comments

My daily meds...

 OsteoPhase & Herbal Boost- Natural way to build bones and damaged tissues / celluar energy production
 Hemoxide & Rejuvin- Improves blood circulation, opens up the walls of the arteries, immune booster, regenerate cells, pain reducer
 Marijuana- Natural way to reduce pain (avoid prescription drugs)

Added by Mr.JAH on September 30, 2009 at 6:25pm — 1 Comment

New Site, New Movement, Get On Board!

Hey all! Check out the fan page below on facebook for a really exciting project being produced about Sickle Cell Disease. Get Informed, Get Inspired, Get Empowered, Get Involved!

Check back often if you want to participate in an innovative and empowering movement!

Project Hemoglobin S Fan page on Facebook!
http://www.facebook.com/home.php?filter=pp#/pages/Project-Hemoglobin-S/136802918724?ref=nf

Added by Keda B. Reel on September 30, 2009 at 2:01pm — 2 Comments

Feeling Like Crap!

I'm so tired dis morning, I could hardly get up and get my boys ready for school. My Grandma used to say I got tired blood....I use to always think that if I get to bed by maybe 9 or 10 I would be ok in the morning, that theory has long be unapproved. I take one a day and folic acid for some type of energy and yet I'm still unbelievably tired most of the times. I don't drink caffeine becuz I suffer from migraine so that is out of the question. Do anyone else have this problem and do anyone have… Continue

Added by Trish on September 25, 2009 at 8:38am — 7 Comments

My Life with Sickle Cell Disease

I have started a daily blog about my life, check it out at:

http://livingwithsicklecelldisease.blogspot.com/

Added by Lily C. on September 24, 2009 at 1:06am — 2 Comments

How to assist a friend with Sickle Cell

Hi, I have a female friend with Sickle Cell. She goes in and out of the hospital several times per year. She has a good support system. She has a college education, a full time job and she is a single parent of 2 children. The problem is that every time she goes into the hospital she gets behind on her bills because "she makes too much $ for any type of public assistance." Does any one know of temporary assistance for cases like this? She is wants to be able to work and take care of her… Continue

Added by Carmen on September 23, 2009 at 10:07pm — 2 Comments

Blood Count

I was in the hematologist/oncologist office the other day and over heard the nurse telling a cancer patient about her blood count and it was much higher than mine. I understand cancer is a big deal as a matter of fact I have an aunt that's dying of cancer as we speak but if a cancer patient's count is much higher than mine than when are they going to start to believe that SCD is a deadly disease and deserves as much research as cancer. I hope I haven't offended anyone. It just gets frustrating… Continue

Added by Trish on September 23, 2009 at 12:35am — 7 Comments

A heartwrenching article:A 100+years of sickle cell and we still have problems

I want to post this article that I came across and I think we all need to be concerned.Is it just me or does this mean that we as parents and people that are suffering from sickle cell are still secretly ignored and what more do we need to do so that we are heard.I was not worried about the health care reform bill until I read this article!It is long but u have to read the whole… Continue

Added by NICHOLE on September 22, 2009 at 11:30pm — No Comments

True Life ---I Have Sickle Cell

Hey all, i got this from sickle cell warriors blog, yal should def check her blog

Hey guys, MTV's True Life is doing a story on " I have a life altering ailment or illness." If you are interested getting our story out there then you need to send an e-mail to seriousillness@mtvn.com. You should include your name, location, phone...etc. Let's make sickle cell known to the folks at MTV~!

Added by Ade Dotun on September 21, 2009 at 7:24pm — 5 Comments

True Life- I have sickle cell

I dont know if Sickle Cell Warroir has already put this up but MTV's True Life is doing a story on " I have a life altering ailment or illness." If you are interested getting our story out there then you need to send an e-mail to seriousillness@mtvn.com. You should include your name, location, phone...etc. Let's make sickle cell known to the folks at MTV~!

Added by Bukky Ade on September 21, 2009 at 6:47pm — No Comments

NCAA's sickle cell test plan raises fears

I found an interesting article regarding the national collegiate athletic assoc screening college athletes for sickle cell trait...... let me know what you think.

http://www.sfgate.com/cgi-bin/article.cgi?f=/c/a/2009/09/14/MN2P19LCJM.DTL…

Continue

Added by Tracy H. on September 16, 2009 at 8:30pm — 2 Comments

Cure Research

I was wondering what the latest research is on the treatment for sickle cell anemia. Has there been any discoveries in being closer to a cure? -Adriana

Added by Adriana Jade on September 12, 2009 at 12:00am — 2 Comments

Finally Nicosan Day One!!!

Today is my first day of nicosan. I originally bought it a couple month ago but after recently being diagnosed With blood clots, my doctor, my mom, and I decided to wait to start the medication until i was done taking Lovenox.Even though I am not finished with taking the medication (lovenox), I have decided to take the nicosan anyway.I have heard great things about it and wanted to try it out for myself. To document my progress i will be writing daily blogs about my experiences throughout the… Continue

Added by Kierra Johnson on September 8, 2009 at 10:16pm — 2 Comments

Pilot Program for a drug that targets sickle cell crisis

I came across this article the other day and am keeping my fingers crossed that this drug will be proven effective for treating sickle cell crisis.

http://www.reuters.com/article/pressRelease/idUS174025+03-Sep-2009+BW20090903

Added by Ava Grace on September 8, 2009 at 11:25am — 1 Comment

Shimmy Shimmy Shimmy

So one thing that is important to me, is belly dance. I've been doing it for about 2.5 years now. I'm not a professional dancer, nor am I in any troupe, but I take classes, and dance at the Hafla's and various student shows. Its just a fun hobby. Its also one that is responsible for a giant boost of self confidence in myself. Before I started dancing, It could be said that I really didn't feel to good about myself. I was a bit insecure about my weight, even though I really wasn't that big, at… Continue

Added by Nana007 on September 1, 2009 at 3:53pm — 2 Comments