Sikcell: People living with Sickle Cell

We still Hope

January 2010 Blog Posts (7)

Angry

Angry or am I just being irrational, Im 16 its 5:15 and I cant seem to catch some sleep

Uncontrollable emotions followed by an uncontrollable pain

As I write tears are flowing, and I can feel the blood sickle through my veins

Im so sick and tired of living this life, but who is to blame. I've never been so afraid to die, a feeling of incompetence makes me feel ashamed

I have a appointment tomorrow to talk about transfusions. Because I've had acute chest over 12 times, in the… Continue

Added by Brandon Williams on January 29, 2010 at 5:35am — 9 Comments

Future Treatments

Hey, all!

I hope everyone is doing well.

Last week, I took my daughter to her first hematologist appt at Johns Hopkins. She is 9 weeks old and has SS )o: Her hematologist told me that there are new, better treatments for SS coming down the pike, including less complicated bone marrow transplants and safer drugs, and that treatment will be much better for her generation than the preceding generations. However, I forgot to ask him when will those treatments be available. He… Continue

Added by Ava Grace on January 21, 2010 at 4:17pm — 1 Comment

Sickle cell Activism

Hello fabulous warriors!

Okay, everyone here has gotten something from the sickle cell online community in one way or another. Now here is your chance to participate and help others with knowledge the same way you have been helped. Remember, we are the only ones that can change the way the world views sickle cell warriors, and we do this by starting in our circle of influence. Here are a few organizations, surveys and communities that need your input to grow and effectively serve… Continue

Added by Sickle Cell Warrior on January 18, 2010 at 12:30am — 4 Comments

Pain Crisis

Good Day all, I need some info from u all. I'm am in a pain crisis as we speak, but this pain is different. I just wanted to know has anyone else experience this. It started with chest pain, but besided the pain my chest is burning.. Then the pain is moving from the chest to the hip and the knees.. My knee are on fire.. The pain meds are just making me throw up. I am trying to avoid a hospital visit... Please let me know if this happening to anyone....

Added by Chantell-the Overcomer on January 16, 2010 at 1:00pm — 3 Comments

People asking you for your medication

I have had problems throughout my life where people in my life have come to me and asked for some of my medication. In most cases there is absolutely nothing wrong with them, they want it for recreational purposes. This is very frustrating to me because it makes me feel like they don't care about me or my illness. If I give them all of my medication then what am I suppose to do when I have a crisis and really need it? We all know that if we go to our doctors too soon and ask for a refill before… Continue

Added by Neise on January 11, 2010 at 6:59pm — 2 Comments

Journey through Fear/New Beginnings

Unlike most, I never make resolutions. That's because, in part, I know me well enough to know that I won't keep them, but also because I really do try each and evry day to be better than I was was the day before. I spend a lot of time thinking...reflecting...looking for the lessons that I may have missed. Always trying to be honest about who I am and how I feel. I think a lot about the why behind the why I am the way that I… Continue

Added by Kim Davis on January 2, 2010 at 7:44pm — No Comments

Hip Replacement

Happy New Year All?
Good night,I wanted to know if anyone has had or know of any sickle cell patient, having to get a hip replacement? What was the outcome? Did it help? How long it it good for? My daughter maybe in the need of a hip replacement, please keep us in your prayers. Thanks for listening, it really means alot knowing that you all are hear.

Angela

Added by Angela Davis-Beckford on January 1, 2010 at 8:57pm — 3 Comments