Sikcell: People living with Sickle Cell

We still Hope

November 2009 Blog Posts (14)

The Beauty of Truth

For years I have struggled to understand who I am. I can't say how many times I have wondered what my life would've been like had I not had SC. Would I have had children? Would I have earned a college degree? Would I still suffer from depression? There's an enormous host of 'what ifs' that have run across my mind, but I always come back to the truth. My reality.

The truth is that I do have Sickle Cell Anemia. The truth is that I didn't go to college because I was too lazy to… Continue

Added by Kim Davis on November 30, 2009 at 8:01am — 1 Comment

If They Only Knew

Many times...more than not...I have wished pain on others. WAIT...its not as bad as it sounds...let me explain.

My sister endured a recent hospitalization and it was one of those doozies where when they ask where you're hurting you can only mumble "everywhere". I took her to the closest hospital, which is under five minutes away. She was in immense pain and hurting so bad I could feel it. Unfortunately my sister knows this particular hospital's practices pretty well and… Continue

Added by Kim Davis on November 29, 2009 at 7:28pm — 4 Comments

I'm Coming Out!

Lately I've been talking about SC a lot. More than I ever have in my entire life. It is the one thing that I have always avoided and hated talking about.

Back in September I celebrated my 40th birthday. Words alone can't adequately express just how THANKFUL I am to have made it to the BIG 4-0!

According to my doctors, I have long out-lived my life expectancy; however, the Father said otherwise. I’m still here. Turning 40 had a major impact on me in several ways. First, it… Continue

Added by Kim Davis on November 24, 2009 at 9:01pm — 5 Comments

FIND SOMETHING TO BE GRATEFUL ABOUT

So grateful I am to have found this community of SC bloggers. It is impressive to see the number of members here sharing themselves with one another.

The following post is something that I journaled about earlier this month. I feel compelled to share it here on this forum with all of you. Be encouraged!

~NO MATTER HOW HARD IT GETS, FIND A WAY TO FIND SOMETHING TO BE GRATEFUL ABOUT

For some reason I thought that the very next time I'd have to be admitted into the… Continue

Added by Kim Davis on November 24, 2009 at 8:09am — No Comments

Project Hemoglobin S- Thassalemia

Greetings,

The Sickle Cell Documentary is looking for Thassalemia minor or major sufferers that are willing to share their stories of stuggle and triumph. If you have THassalemia minor or major and are interested you are encouraged to contact us @
docprjtquery@demarfilms.net

Become a FAN on Facebook
Project Hemoglobin S

Added by Keda B. Reel on November 22, 2009 at 11:10pm — No Comments

H1N1

Hey All. This website has been a blessing to me.... I just joined about a month ago. I just wanted to know how other people was living with this disease. I have been having my personal battle w/scd, and not really letting people in, because I didn't want anyone to feel sorry for me.... I wanted to know did any get the H1N1 shot?

Added by Chantell-the Overcomer on November 20, 2009 at 12:32am — 4 Comments

Premedicate?

Do anyone pre-medicate? I was told by my Dr. to premedicate myself. It seems a little scary, sometimes I feel like a druggie because I'm taking medicine when I'm not in pain. But it helps especially when I'm going to be out of the house for a long period of time during errands and whatnots or when I exercise. Most of the times I push myself to hard and end up having small crisis at the end of the day. I don't take anything that would make me sleepy, just something over the counter like Tylenol.… Continue

Added by Trish on November 20, 2009 at 12:07am — 5 Comments

Hey SC Soliders!

Hello Everyone, I haven't been on here in awhile and I just wanted to say hello to everyone and hope you guys are feeling good. I'm still struggling as I know all of you guys are too. But we got to hold on and not give up, I tell that to myself all the time especially when I'm feeling my worse. I know I've said this before but I'm so happy I have found people like myself who can relate to me and not feel sorry for me. Thanks again for your continued support.

Added by Trish on November 16, 2009 at 3:22pm — 3 Comments

Stem Cell Research

Today me and my family entered a study conducted at NIH on stem cell research.We have a 20 month old baby with Sickle Cell SS and we currently are expecting a baby in February that we dont know the status on as of yet!Since this is a network dedicated to people with Sickle Cell I would like any input on what u think about Stem Cell Research and the ways that it can cure this disease.I would also like to know if anyone has ever met anyone that has considered having it done or has had this done… Continue

Added by NICHOLE on November 12, 2009 at 11:04pm — 3 Comments

~41 & Sailing right along~

Listen my Sickle Cell Family!!! Protect your body as much as you can. If you have to take pain meds plz flush your body with alittle lemon water or apple vinegar water...Eat as natural as possible!! No fast foods or limit your fast food intake. NO SALT!! Plz use Mrs.Dash & Cayanne Pepper as often as u eat. Shop at stores where the produce is organic or less chemicals as possible. The older we get our organs began to feel the effects of having sickle cell. Those darn sickled cells will… Continue

Added by LaNora on November 10, 2009 at 1:30pm — 2 Comments

Live life to the fullest...or lost?

For so long I have keep me having sc to myself but my doc. told to get online to better educate myself and thats when I found this network for people like myself. I never did the support group thing and told my fam to treat me no different than my siblings but as I got older I found myself having questions and just by reading alot of ur blogs it has truely help. I'm 26 living with sickle cell and I have two children with the trait. And I am thankful that Im at home after two day at the… Continue

Added by Tahara Boston on November 6, 2009 at 12:59am — 1 Comment

STILL RECOVERING

JUST WANT TO SAY THANK YOU TO MY SC FAMILY FOR YOUR PRAYERS AND FOR JUST THINKING ABOUT ME!!!!!!!!!!!!!!! LOVE YOU GUYS!!!!!!!!!!!

Added by Thewana Bradley on November 5, 2009 at 10:08pm — 3 Comments

How to I allow my child to grow as an adult

As I stated before in previuos post I have a daughter who is turning 16. I have treated her like a baby all her life. I guess out of guilt I let her do less than my other kids. I give her just about anything she wants. I know it not right but I thought at the time I was doing what was best for her. I am now starting to realize that she is too depenedent on me. Everytime there is a problem she calls me for help, I dont mind, but she cant handle anything on her own.

For instance me or… Continue

Added by Sharolyn Hutchinson on November 4, 2009 at 7:47pm — 4 Comments

Transutuin from Pediatric to Adult with SCD

My daughter is 15 going on 16, I know she has a couple of years before she will have to go to the adult clinic. I was just wondering if anyone had any suggestions on how to make the transition smooth. I know when you are a child they give you medicine with no question. As a adult I am told that they give you a hard time about pain medicine.

Added by Sharolyn Hutchinson on November 3, 2009 at 5:29pm — 4 Comments