Sikcell: People living with Sickle Cell

We still Hope

August 2009 Blog Posts (14)

Pictures

Okay everyone...seriously, I'm tired of looking at those green bobble heads! Please put pictures up...give the site some more personality. I love being able to put faces to names. If you shirk at putting a pic up of yourself, put one of your favorite pictures, or something that represents you. Say NO to green bobble-heads!

Added by Sickle Cell Warrior on August 27, 2009 at 4:09am — 2 Comments

Dee

I like this site. Great.
Lets continue the dialogue.

Added by Darryl Alladice on August 26, 2009 at 11:03pm — 2 Comments

Has anyone every experienced severe muscle spasms. My dauhgter is 15 and the last 8 months have been horrible for her. Lately, her crisis have changed and she screams out saying that she has this sha…

Has anyone every experienced severe muscle spasms. My dauhgter is 15 and the last 8 months have been horrible for her. Lately, her crisis have changed and she screams out saying that she has this sharp pain that runs from the top of her head to her ankles. She is taking morphine and everything and nothing helps the sharp pains. She was admitted in the hospital several times for this type of crisis. She was on a dilutted pump and she still would get the sharp pains. I just wanted to know if… Continue

Added by Sharolyn Hutchinson on August 26, 2009 at 9:17pm — 3 Comments

On The Other Side Of Through

That's the title of my new Blog Post at my sight....http://1chanceonly-bigdaddy54.blogspot.com/ hope we can get a discussion going about some of this. Maybe it will help someone.

Added by Ronald Ragin on August 22, 2009 at 8:49pm — No Comments

using a plane

can anyone help me n tell me if u can gat crisis when u use a plane one doctor was telling me that u cant use a plane when u r a sickler how true is this and what should i really do when i have to use a plane

Added by schola on August 22, 2009 at 5:45pm — 13 Comments

This is amazing!

Hey Everyone! I just joined People Living With Sickle Cell and I am suddenly filled with so much hope! I live in MN where only 12% of the population is Black and where I have probably only met 1 other person with sickle cell. I have felt so isolated. It is so hard living with an illness that you have to convince the doctors that you really are suffering from excruciating pain on a daily basis. African Americans already have to deal with the day to day racism that lives within our society. Add… Continue

Added by Lala Skye on August 22, 2009 at 1:30am — 2 Comments

folic acid

what should i take to help my hb iron tablets or folic acid

Added by schola on August 20, 2009 at 4:59pm — 2 Comments

Does swimming trigger a crisis?

Hello All,

I noticed from a young age that any time I went into a pool I got a crisis. I am not talking about showers and tub baths. I would like to hear from the rest of the community. It is very frustrating, especially now because it is summer in the northeast United States. I live in a development with a heated pool. I have gone in for five minutes, but I don't dare to stay longer than that.

I took swimming lessons last september, but I had to stop because although the pool… Continue

Added by Ali on August 18, 2009 at 2:17pm — 6 Comments

Hello There

I just joined this website not to long ago. I'm so happy I found out it to be able to connect with others with Sickle Cell disease is great. Especially since I'm the only one in my family with the disease, so I really don't have anybody to talk to about this.

The name is Nana I'm 22 soon to be 23 in another month. I live in Atlanta, Ga currently although I am originally from New Orleans. I am a student, I go to school full time and work part time as a hostess in a restaurant. I go to… Continue

Added by Nana007 on August 13, 2009 at 6:30pm — 4 Comments

Hard Week

This week I been really sick I keep get these sharp pains all over my body. I cant walk that good I need help coming downstairs. It hurts so bad I be crying. I dont like being sick because when I'm sick I cant do nothing because my legs be hurting really bad. I get most of my pain in my legs and back and arms. That's what happened this week.

Added by Richard Hutchinson on August 12, 2009 at 5:11pm — 1 Comment

Hello Everyone

Hello Everyone:

I am glad I found this place I would like to meet new people with Sickle Cell Anemia and make new friends. I will be back on later tonight.

Added by etta on August 10, 2009 at 10:05pm — 3 Comments

How keep your faith....

J how difficult the life can become when we found that our love one born with a special condition. I think everything goes to the floor and you just loose your conscience when the doctor just look at you and say: "You know, your baby has some disease for life." I confess that for the first time in my life I questioned God's action, and I wanted to know why this was happen to me.

For while was difficult even to think about the doctor's words. I felt guilty and a looser.

But I thank God… Continue

Added by Nina on August 9, 2009 at 4:55pm — 1 Comment

My daughter has Sickle Cell Disease

I have a 15 year old daughter who has sickle cell. When I see her in so much pain I feel so helpless. She was diagnosed at birth, so it's been a long 15 years(worth it). She was doing really good up until about 2 years ago. She would have minor pain crises and alot of fevers(enemy) but nothing to major. In the last two years she has had severe pain. She went from taking Advilt to control the pain to now she is taking dilloted through the IV and she is still in pain. For all the mothers out… Continue

Added by Sharolyn Hutchinson on August 6, 2009 at 11:28pm — 3 Comments

Beware of Sedenafil (Revatio) Study for Sickle Cell Halted

Don't know if you are familiar with this study on the effects of sedenafil on Pulmonary Hypertension? Pass it along.

http://www.docguide.com/news/content.nsf/news/852571020057CCF6852576010056215E?OpenDocument&id=48DDE4A73E09A969852568880078C249&c=Cardiology%20Other&count=10

Added by Ronald Ragin on August 1, 2009 at 6:00pm — 2 Comments