J how difficult the life can become when we found that our love one born with a special condition. I think everything goes to the floor and you just loose your conscience when the doctor just look at you and say: "You know, your baby has some disease for life." I confess that for the first time in my life I questioned God's action, and I wanted to know why this was happen to me.
For while was difficult even to think about the doctor's words. I felt guilty and a looser.
But I thank God because he made me understand that all of us have a mission here and even when we think it's not fair he can make us believe that he is our soul and can give us strength.
My son had just turned 1 year old last Saturday, and I felt like we should celebrate because he, until now, had only minor symptoms and we are working to make his life a bit easy. But it's very painful to know that even with all our effort at some point he can have some crises and i pray to God to give me the power to go trough with my baby.
At the beginning I was crazy and I think I've reading almost 24 hours about SCD. I started to feel stress every time I talk with a doctor and they can know and understand me, they didn't have the time to read as I have and sometimes it's hard to tell them about some scientific study because they just don't believe or agree.
Guys this community means a lot to me. Here I can find security in my down moments. It's good just be here and see how people can be happy and strong, even when they have something that could be a obstacle for another person. This community make my faith be up all the time, and I thank you guys!!!!!!

God bless you all.