Sikcell: People living with Sickle Cell

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Jhana Blackwood Female Oviedo, FL United States: Like

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Parents with Guilt; Treatment with Guilt; "Sicklers" with Guilt.....Is this the guilty disease???

Started this discussion. Last reply by Jason Bioba Goldie Oct 19, 2009. 13 Replies 0 Likes

As a parent of a child with Sickle Cell when we see them in so much pain you feel guilty, and wish you could find someway to take it away. Most of us never expected to have or ment to have a child…Continue

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At 8:57pm on August 6, 2018, Ade Dotun said…: Happy birthday Jhana! Hope you are well

At 12:52pm on September 29, 2009, Jason Bioba Goldie said…: Greetings!
Just wanted to wish you Gods’ grace. How are you and your family (your daughter), hope all is well. Just wanted to let you know God is in control:
WHEN YOU ARE STRESSED
LONELY AND PAINED
TAKE TIME TO SAY:
LORD, I KNOW YOU CARE
HELP ME HAVE FAITH MORE.
Gods’ gracious healing power I profess to you: by his stripes we were healed (Isaiah 53:5.)
Jason Goldie

At 5:00am on September 13, 2009, Sickle Cell Warrior said…: Hey Jhana, I'm working the next few days, so I might not have a chance to call you until later this week. You can shoot me an email with your questions if you want though vixentales @ gmail. I've been on Nicosan for over a year, and it's been working great for me. I can also put you in touch with some others that have been on it. Regards.

At 11:18pm on September 11, 2009, Cheryl Louisme said…: That name sounds so familiar. My son, Sean was a patient at Nemours. He is 22yrs old now and I run the Sickle Cell Support Group for Tri-county. If I see you, It would probably jolt my memory.