Sikcell: People living with Sickle Cell

We still Hope

April 2009 Blog Posts (5)

Sickle Cell Pain Research

For those of us that keep running into Dr's, that deny that we are in pain, here is an article, that I've come across that would be great for educating the ignorant masses. Physicians are more prone to believe research 'from their own kind' as if your word on a disease you've been dealing with all your life is not enough. *rolleyes*

This is a qualitative study done in Virginia which states that sickle cell patients are in pain most of the time. It's a PDF file...you must have Adobe… Continue

Added by Sickle Cell Warrior on April 29, 2009 at 5:43am — 2 Comments

Hello everybody!!!!

How nice is find something like this blog. This will be very helpful, because by it I can communicate with people who live with sickle cell. First, I beg you pardon because my English is not good, then sometimes it will be confuse.

But any way, here I going to tell a little about me and my family.

As we, my husband and I, are carriers of Sickle cell trait, my little baby born with SCA. He was diagnostic in the first blood screening right after he was born, and 2 weeks after his… Continue

Added by Nina on April 28, 2009 at 2:07pm — 7 Comments

I miss working

I became ill at work on May 7, 2008 and was taken to the hospital by ambulance. I returned to the job on May 21 and left again on May 23. On May 29 I received a call informing me that I was fired due to attendance. I have not returned to a job since then.

I feel isolated. I am only 42 years old. I never had a "profession", but I worked steadily from the time I graduated from college. At one point, I attended grad school for three semesters. My doctor said do you want to be dead with… Continue

Added by Ali on April 21, 2009 at 6:33pm — 3 Comments

Nicosan (Nigerian drug) for stickle cell - PLEASE READ IT ALL - (need you help to help yourself)

I am from Brasil, I do speak a couple of languages so forgive me If i have any gramatical errors here...

Actually I am from Argentina and I live in Brasil. My wife is from Brasil and has sickle cell).

I am always searching the net for any "solutions" to this problem. I found a drug from Benin (Africa) called VK500 which acts like Nicosan, but actually VK500 is not being produced at the moment (financial problems in Benin and Angola, which are the two countries who uses… Continue

Added by Eduardo on April 13, 2009 at 1:43pm — 4 Comments

Overwhelmed mother of sickle cell infant..

What can i say - i am a worry wort

I am blessed to have a beautiful baby girl, that has Sickle Cell Disease. Why so overwhelmed you may ask. No it's not mother hood. Its the fact that i feel robbed! I always dreamed of being the cool mom who shops and hangs out with her kids. That we will share everything, now i have to live outside of my fantasy dream. We do not share this disease. Which means i was robbed of the one job a parent has, protecting their child from danger AND… Continue

Added by SHAY FRANCO on April 6, 2009 at 5:56pm — 3 Comments