I became ill at work on May 7, 2008 and was taken to the hospital by ambulance. I returned to the job on May 21 and left again on May 23. On May 29 I received a call informing me that I was fired due to attendance. I have not returned to a job since then.
I feel isolated. I am only 42 years old. I never had a "profession", but I worked steadily from the time I graduated from college. At one point, I attended grad school for three semesters. My doctor said do you want to be dead with a masters degree. I could not handle a full-time job and grad school at night.
I have a high level of fetal hemoglobin, which has protected me all my life. However, it has not protected me from chronic pain in my lower back and hip that began in the fall of 2006. My family tells me that I tried hard. I know that I did. I wish that I could have found an employer that cared and would allow me to work on days when I was well enough to work and not fire me because I was suddenly hospitalized.
I used to hide my illness from employers when I was younger. I was not prepared to be punished for something beyond my control.
I have never blogged before. I hope that I did not write anything that I will regret.