After the toughest year of my life, I’m thankful.…

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We are booking musical acts for our December Burgandy Artists Showcase!

If you are in the Los Angeles area and would like to be a part of Project Hemoglobin S Artist showcase please submit a inquiry to fjemedia@gmail.com. Showcase will feature up emerging musical artists of various music stylings performing for Sickle Cell Disease Awareness and Empowerment. You must be at least 21 years of age for consideration. Contact us as we would…

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I was inspired to post this poem from Alexia's blog post called "no title". This poem helped me out a lot:

I never saw a wild thing
sorry for itself.
A small bird will drop frozen dead from a bough
without ever having felt sorry for itself.

Hello everyone. I'm happy we can be able to discuss the struggles we face living with sickle cell. My questions to yall. Do you get depress often? I started having sickle cell crisis when I was 18 years old. Now I'm 28. I had my first panic attack when I was 20. I couldn't breathe and my heart was beating fast. Later on, I was feeling depress about life. I felt alone eventhough my boyfriend at the time mother has sickle cell, as well as my sister, I felt alone. I was angry that I had to endure… Continue

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ITS IS WOUNDERFUL FINDING THIS WEB SITE, I'M 45 MALE WHO HAS BEEN LIVING WITH THIS ALL MY LIFE, IVE BEEN TO VERY LOW POINTS AND NOW I'M RIDING HIGH FREE FROM MAJOR PAIN EPISODES. SO I WOULD TELL ALL YOUNG PEOPLE TO GET YOUR BODY INTO TOP SHAPE, MAY CAUSE PROBLEMS ON THE WAY BUT THE BENIFITS WILL BE GREAT. TO THE OLDER ONES DO THE SAME. THE REASON I MAKE THIS SUGGESTION, UP UNTIL I WAS 13 I WAS ALL WAYS SICK SINCE THEN I HAVE NOT BEEN IN THE HOSPITAL NOR HAVE HAD ANY MAJOR PROBLEMS. IVE…

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I have been living with sickle cell for many year in May this year i turned 21 years but i had never experienced the situation am in now am feeling body weakness. When i went to hospital for check up they made every test and they found that every thing was okay. I cannot write during lectures and i cannot also revise on my own yet we are heading to exams. So any who has ever experinced this situation help me

Dear All,



I am fairly new to this site. I joined because i have a daughter with sickle cell. she is 10 months old and has had one crisis. It wasn't too severe, we were admitted for one night and she had some iv and antiobiotics given to her aswell as some pain killers.



I have been reading alot about the disease and i have come to realise that HYDRATION is the key (maybe not the key but certainly one of them). My problem is getting my little girl to drink the recommended amount… Continue