Sikcell: People living with Sickle Cell

We still Hope

March 2013 Blog Posts (7)

Web Education From Information Center

Ge t information about web seminars for sickle cell disease our world-wide source for information.

CDC Sickle Cell Information Center Important seminars coming…

Continue

Added by P.Allen Jones on March 26, 2013 at 6:00pm — No Comments

Pain relief before transfusion?

Few days till my transfusion, I'm so tired i just want to sleep and I've been having small crisis everyday in my low back, I've started to take too many pain killers so I've tried warm bath soaks and heat packs any other suggestions anyone?

Added by Austyn Hart-Tinsley on March 23, 2013 at 2:21pm — 4 Comments

Need Help Create Awaremess About Sickle Cell

Need Help , Hello Guys I am Suffering from Sickel B thal , i was not knowing that this is the bigest Deases. in Feb 2010 i married to a girl , i did updated that i have blood cell issue , however as per our mutual undersatnding our family has kept our Marriage with all Hindu cermny on 28th MAy 2010, on 15th MAy 2010 i fall seek , i asked my wife to go for chek up, she took me with her Sister inlaw and she did all the report, i was asking about the report and she was saying all is well . on…

Continue

Added by Manish J Patel on March 22, 2013 at 2:00pm — 3 Comments

MAGIC FOOD YOU HAVE TO TRY AT LEAST ONCE!

My boyfriend has been so worried because no matter what the doctors try, I always end back in the hospital from pain. He did some research and now I don’t take many pills I eat Cassava. They are an African yam that supposedly have great properties and vitamins that help prevent yes prevent sickening of SCD. This was the first receipt I tried it was good not great but I’m not stopping there my brother is a Chief…

Continue

Added by Austyn Hart-Tinsley on March 13, 2013 at 9:00pm — 2 Comments

Submit Your Comments To Survey

Added by P.Allen Jones on March 12, 2013 at 3:52pm — 1 Comment

mild case of sickle beta plus thal

My son has been diognosed with this does anyone know wot to expect?

Added by shenna on March 11, 2013 at 3:40am — No Comments

Spleen Sequestration.. is there a way to reverse it?

Hello, im new here and hope i can find help. my child is sickle cell diseased. he is my only child so far. he developed a spleen sequestration at 12 months then again another one at 15 months (last week). he needed blood transfusion in both. Now the doctor is telling me that he will need regular blood transfusion every month to keep his hemoglobin levels above 8 and if his levels are already above 8 then a blood exchange will be done. im so scared and devistated to see ny young son having to go… Continue

Added by Yoseph on March 9, 2013 at 5:51am — 2 Comments