My daughter has the majority of her pain in her legs so it is hard for her to walk when she is in crisis. Does anyone else have this problem, it makes her life very difficult. For the past 2 years she has missed so much school. She goes to school for three weeks and then she out for two weekks, I took her to the dr and they say her blood work is good. I took her to a pain management specailist and they said she is very strong and doesnt need any stroner medication. They gave her a medicine…

Continue

well actually i was doing homework when i came across these articles:

'Mini' Transplant May Reverse Severe Sickle Cell Disease

http://www.sciencedaily.com/releases/2009/12/091209171450.htm

* after reading article, would you consider this?



this one's a bit more broad:

Researchers Find Key To Keeping Cells In…

Continue

Hello Everyone:

I hope all is well with your health. I haven't been on for a while I am doing well with my health. I have been busy with my kids all of there fundraisers from school. I will be back later or tomorrow. take care and healthy.

Etta

Hello everybody,am going through a serious heartbreak and am so dead over emotional...i just need some blunt advice to move on.have been in pain since and i just need help to move on with life.

Remington College and the Sickle Cell Disease Association of America are partnering for a series of blood drives to be held at Remington College campuses across the country throughout the year. The program is called “3 Lives” - because three lives may be saved for every one pint of blood donated.…

Continue

Hello everybody,i have been going through alot of pain at my right leg,then it turned out that it is swollen.i dont know how to handle swollen leg,so i went to the hospital where i was admitted,infusion given,diclofenanc sodium inj administered but it is exactly 1 week and my leg is still swollen. What can i do? Am i having kidney failure or heart failure? Am i safe or in danger zone. God am just scared.

Building a tolerance to your pain meds is common with Sickle Cell, but something I'm only starting to notice in myself. Now my history with Sickle Cell isn't all too terrible compared to some. I was often sick as a child with frequent hospitalizations for pain crisis. I've had Acute 3x and been hospitalized with the flu and pneumonia often as well. I also had my gallbladder removed. The majority of this happened to me as a kid and teen from 3-16.



I went through a period from the age… Continue

So I really don't know what to say about the past few months and whats goin on with my sickle cell. I have never had this much happen to me in such a short span of time...on New year's eve the doctors told me that the knot on my hip was an abscess that was infected! ok...antibiotics and I'll be good is what I was thinking. Nope surgery all from a nurse who gave my phenergan injections IM (intra- muscular) in the same spot and it never absorbed into my muscle. i walked away with a nice wound… Continue

I just came home from being in the hospital for 8 days. i feel much better now on a scale of 1 to 10 my pain level is about a 4 which is tolerable for me i am hardly ever completely pain free anymore. i can't remember the last time i was completely pain free but 4 or less i can deal with 8 or more for more than 24 hours straight and i need to go to the hospital especially since i take 160mgs of OxyContin twice a day plus 60mgs of OxyCodone for breakthrough pain as needed. When all of this fails… Continue