Sikcell: People living with Sickle Cell

We still Hope

July 2009 Blog Posts (12)

Some Good Things Turn Our Not So Good

I just posted on my site that after my hospital stay a week ago I had to go back to have my Port looked at. Find out what happened and join in on the conversation at the link below.

http://1chanceonly-bigdaddy54.blogspot.com/

Added by Ronald Ragin on July 30, 2009 at 4:56pm — No Comments

GOING THRU DETOXIC !!!!!!!!!!!!!!!!!!

I JUST GOT OUT AN THREE WEEK HOSPITAL STAY & THEY CALL THEIRSELVES DETOXICING ME AND 2 ME IT IS RAZEY I HAVE BEEN HOME 4 ABOUT AN WEEK WITH NO PAIN MEDS AND I STILL HAVE PAIN BUT I'MTUFFING IT OUT R TRYIN ANYWAYA I DONT KNOW HOW MUCH MORE I CAN TAKE NOW I WANNA KNOW HAVE ANY OF U'LL TRY IT AND HOW DID U FEEL ????????????????????????

Added by MS.KNIGHT on July 29, 2009 at 8:55pm — 1 Comment

Have You Ever Caught (or suspected) that your Nurse gave you saline instead of your pain medication?

I had to write on this topic! Unfortunately, I have had several experiences where I have caught my nurses trying to "pull a fast one" as though I could not tell the difference! If you have been on pain medication for years like I have you know the difference! I watch my health care providers very carefully because I have come to find that I can't always trust them. They already have it in their minds that Sickle Cell patients aren't really sick and are just "drug seekers" so why wouldn't they… Continue

Added by Neise on July 28, 2009 at 11:46pm — 5 Comments

How Do I Feel

I place a new post on my blog. Since I am recuperating from the hospital, I thought I would talk about this subject. Hope you can join in on my comment section.
http://1chanceonly-bigdaddy54.blogspot.com/

Added by Ronald Ragin on July 26, 2009 at 11:59pm — 1 Comment

My Trip To Camp

Yesterday I came home from my camp the camp is called The Hole In The Wall Gang Camp. At camp I was in the green unit. The green was the older unit.The green unit got to do everything we got to climb the tower we MC for stage night. We got to stay up to 11 at camp we got after parties. This was my last year because I'm 15 years old you only go up to the age of 15 so I was so sad that this was my last year. I had fun my last year at camp. I love The Hole In The Wall Gang Camp.

Added by Richard Hutchinson on July 23, 2009 at 9:36pm — No Comments

Day 5 At Sickle Cell Camp

View my blog and you will read about my hospital adventure as well as the Sickle Cell Camp in Los Angeles. Click on the link below.

http://1chanceonly-bigdaddy54.blogspot.com/

Added by Ronald Ragin on July 22, 2009 at 8:06pm — 2 Comments

Hate what the Pain Meds make you say... What did I Just Say?

I hate when you have no inhibitions when on big doses of pain meds(Narcs) and when you come off them u realize u said something u shouldnt have said or was embarrsing and then u just wanna run away and u keep thinking of what others r thinking about what u said ...also i hate when the meds falsely motivate me and when im off them the motivation is gone and u feel sort of weird.
is it me and my personal insecurities or do we all do this

Added by Dave on July 19, 2009 at 5:17am — 3 Comments

Sickle Cell Disease Foundation of California Camp Starts July 18

Go to my blog http://1chanceonly-bigdaddy54.blogspot.com/ to read my comments about this caamp.My blog is, Sickle Cell Anemia...The Male Perspective.

Added by Ronald Ragin on July 17, 2009 at 6:57pm — No Comments

Men With Sickle Cell

I blogged on my website http://1chanceonly-bigdaddy54.blogspot.com/ that Males with Sickle Cell are the silent majority. Go to my blogsite above and let me know whatyou think about it.

Added by Ronald Ragin on July 11, 2009 at 4:28pm — 3 Comments

new friend

hi. iam happy to find this wep .i,m 34 years i have sickle cell with three brothers one of them died this years . i hate to bee yellow eyes and face . i hop thate you can accept me with you and share me your experance with sickle cell .

Added by memy al alabduly on July 10, 2009 at 7:19am — 3 Comments

My 15yr old daughter Shatera with Sickle Cell

My life is really hard because I have sickle cell I am 15 years old. I was born with sickle cell I had sickle cell. .I was in the hosptial all of june I just came home on july 4. I was in the hosptial for 9 days. I had 8 blood transfusions in June. I am in a lot of pain the rate of my pain is 8, and sometimes I want to say 12, that's how bad it is sometimes the strongest medicine don't even work. That's life with sickle cell. Help Me Fight Sickle Cell.

Added by Richard Hutchinson on July 9, 2009 at 9:16pm — 4 Comments

It's a wonderful thing to have this site!

My name is Dan and I have Sickle cell SC. I am 34. I'm praying for everyone on here and I'm glad to have someone to talk about this with. We all are so blessed to be alive and able to communicate our problems.

I was diagnosied with this disease in 1996 when I was in the Navy. When I was younger, I went to the hospital once

or twice a year for extreme pain in my legs. The doctors told my mother I was having muscle spasms.

Everytime I would over use my muscles they would… Continue

Added by Dan Elliott on July 2, 2009 at 4:54pm — 4 Comments