I had to write on this topic! Unfortunately, I have had several experiences where I have caught my nurses trying to "pull a fast one" as though I could not tell the difference! If you have been on pain medication for years like I have you know the difference! I watch my health care providers very carefully because I have come to find that I can't always trust them. They already have it in their minds that Sickle Cell patients aren't really sick and are just "drug seekers" so why wouldn't they try us by giving us saline to see how we would react!
This is one of my experiences. As the nurse enters my room, I could already tell her attitude was not right. She then begin a little idol chatter with me while supposedly giving me pain medication (usually IV demerol or dilaudid and phenergan). A minute after she administered the meds I immediately knew something was not right! She asked me how did I feel (I guess to see my reactions after giving me a placebo)! I told her that I was still in pain and the medication did not help at all. I have been taking these meds for years so I know how they are suppose to feel. She said to me that she could not give me anything else. I decided to give her another chance. I stood by the door and waited for the nurse to come in. I stood right there so I could watch her draw my medication. She came to my bed and covered the syringe as she talked to me so I wouldn't pay attention to what she was doing. I couldn't believe what happened next! She actually pretended to push the medication through my IV! I told her that she did not give me anything because I saw her! She just walked out the room because I'm sure she knew it would be my word against hers. Suspecting that I had been given pure saline the first time and knowing that she did not give me anything the second time I called the charge nurse. I told her that I felt uncomfortable with my nurse and that I did not want her to continue taking care of me. She immediately found me another nurse and the next 3 hours when my meds were due she gave them to me and I finally got the relief I needed.
I have also expereienced nurses only giving me "part" of the pain medication that was prescribed for me. My doctor prescribed 4mgs of dilaudid and 25mg of phenergan every 3 hours. I knew this routine well. The nurses always brought in 2 vials of of dilaudid which were 2mg a piece and 1 vial of phenergan which was 25mg for a total of 3 vials. Most of the nurses would actually bring them to my room and draw them up there. I had been in the hospital for 2 weeks and this was the rountine. One morning a nurse came in and as usual I asked her for my pain medication. I always make it a point to say "I want the 4mg of dilaudid and the 25mg of phenergan". This day was no different. The nurse brought the medication to my bed in a little basket and I noticed there were only 2 vials in there instead of 3. I did not say anything at this point. She gave me the medicine and threw the vials in the trash. When she left I went to the trash can and looked at the vials. It was 1 vial of dilaudid equaling 2mg and 1 vial of phenergan equalling 25mg. I called the nurse and asked her to come to my room. I asked her what did she give me. She stated that she gave me 4mg of dilaudid and the phenergan. I stated to her that I noticed that she only had 2 vials and the nurses normally gave me 3 vials. She stated that the vial of dilaudid she gave me contained 4mg. I then said to her that I had never heard of that before in that hospital and that the highest dose I was told it came in was 2mg. Knowing she had been caught she stated that she would "SHOW ME" the next time she gave me my medicine that there was a 4mg vial. Of course I knew what would happen next. Three hours later I requested my meds and she came in with the syringe PRE-DRAWN. I was friends with the charge nurse and I asked her about the meds. She stated there was no 4mg vial. I could tell that from then on she gave me the full dose because I could tell how it felt but never once did she produce a 4mg vial.
I've also had nurses that would come to my room with the wrong medications and when I question them and ask them what they are about to give me they have gotten an attitude. I've had a doctor to tell me that they need to find something else to do with Sickle Cell patients besides just giving us pain medication. This just really pisses me off because I doubt if they play these games with Cancer or Aids patients so why do that to us? Why is my pain so different? Why do I always have to suffer because of someone else's ignorance? Has anyone else ever experienced anything like this? Please let me know your experience if you can relate!