We still Hope
Started this discussion. Last reply by sandra Apr 11, 2011. 10 Replies 0 Likes
Dude I was like so excited when I left the docs office last week she told me now when im taking on my meds 500mg of hydroxyurea 3 tabs every night same time. I have been pain free!! and I feel great…Continue
Started this discussion. Last reply by Darin Adams Nov 12, 2010. 5 Replies 0 Likes
I been in pain for about 5-6 days on pain meds but there not working my moms opening a daycare and is not letting me get any rest. I am sitting here now she finally found a prescription for the pain…Continue
Started this discussion. Last reply by Luchy Feb 26, 2010. 3 Replies 1 Like
Miss Yumi,I have a disease too you know, is what you saidWhen I told you about what kind of man I am.It’s called sickle cell anemia, Is what was told to meI looked it up and saw what price was on…Continue
Started this discussion. Last reply by Ebony Ravenell Jan 12, 2010. 11 Replies 0 Likes
I talked to my father we stayed up as he watched football and I played pokemon on my DS I was shivering and he looked at me. We had a long talk on sickle cell and he pointed out some great points. My…Continue
Posted on June 9, 2018 at 6:01am 0 Comments 2 Likes
So Recently I was back in the hospital for many reasons, my main reason being my hemoglobin was at 4.2 the lowest i've ever been. I was so afraid of going back to the ER and being judged that I just stayed home no matter what, while my levels dropped I kept passing out anywhere, even in the middle of conversations with family and friends. I also couldn't remember anything and became extremely confused about things I knew like my brothers birthday, when I called him to wish him a happy…
ContinuePosted on April 26, 2018 at 12:20am 5 Comments 8 Likes
I don't know about you guys but I am pretty fed up with hospitals and doctors. One minute they are telling me they believe my pain is real and other times they are telling me its all in my mind. I have had my kidney since 2015, before my kidney my pain was manageable because I was on things like Ibuprofen. But now since I have a new Kidney (Thank you daddy!) I can't have many things, so right after surgery they put me on Dilaudid but now 3 years later your telling me its my fault im on these…
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