“When we speak we are afraid our words will not be heard or welcomed. But when we are silent, we are still afraid. So it is better to speak.” ~Audre Lorde
As my 41st birthday approaches, I am reflecting on my life since September 22nd of last year. I am amazed and even a little proud of how much I've grown and learned about myself...and about sickle cell.…
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Added by Kim Davis on June 25, 2010 at 12:10pm —
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It deeply saddens me that there are so many of us who still suffer in silence. I know what its like to feel like you are all alone in the struggle to be well, maintain, manage and cope with having SC. I understand the constant battle to live a 'normal', productive and uninterrupted life.
Likewise, I also know that it can be difficult to keep a positive attitude. To focus on what is good and right in your life instead of the pain and what you…
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Added by Kim Davis on June 10, 2010 at 12:52pm —
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This is Worth Sharing. Take What You will From It...
THE TEN COMMANDMENTS OF SICKLE CELL DISEASE
Accept Your Disease. Don't ignore it. Respect it, don't fear it. Learn how to master it and not let it master you.…
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Added by Kim Davis on June 9, 2010 at 11:39pm —
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Perhaps the most important thing we can undertake toward the reduction of fear is to make it easier for people to accept themselves, to like themselves.
~Bonaro Overstreet
FEAR
Like my favorite fragrance, I have wear it around my neck.
Its heavy.
It…
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Added by Kim Davis on May 25, 2010 at 3:53pm —
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I am wondering if anyone on this forumn has done or heard of research on the medicinal value of smoking marijuana? I have always smoked marijuana - long before I knew what the world medicinal meant - but it was mainly because I wanted to. I enjoyed it.
Now, I honestly believe that my smoking marijuana aids me in managing SC in many ways. Not only does it serve as a buffer to stress, it also helps me sleep and makes it more bearable to endure the constant, everyday pain in…
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Added by Kim Davis on May 24, 2010 at 4:51pm —
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Unlike most, I never make resolutions. That's because, in part, I know me well enough to know that I won't keep them,
but also because I really do try each and evry day to be better than I was was the day before. I spend a lot of time thinking...reflecting...looking for the lessons that I may have missed. Always trying to be honest about who I am and how I feel. I think a lot about the
why behind the why I am the way that I…
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Added by Kim Davis on January 2, 2010 at 7:44pm —
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I am trying really hard to do as the Good Book says, Be joyful in hope…faithful in prayer, but what I really feel right now is OVERWHELMED! I have been getting my hands dirty...
so to speak...trying to make a difference in our community. This past weekend I had my very first board meeting with FACE Foundation Inc. and all I can say is
WoW!!
There is so much that needs to be done that I find myself wondering if I can
really make a difference. There…
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Added by Kim Davis on December 8, 2009 at 9:45pm —
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Since this is the perfect place to share information
and more importantly, in effort to support
one of our own, I invite you to check out Dominique Friend.
Dominique is an activist and advocate who is doing her part to raise awareness and funding to support improved treatment for those living with Sickle Cell. She has authored a book that has captured the essence of the daily struggles and unpredictability of SC. The book is titled
SICKLE,
A Story of… Continue
Added by Kim Davis on December 7, 2009 at 9:49am —
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For years I have struggled to understand who I am. I can't say how many times I have wondered what my life would've been like had I not had SC. Would I have had children? Would I have earned a college degree? Would I still suffer from depression? There's an enormous host of
'what ifs' that have run across my mind, but I always come back to the truth. My reality.
The truth is that I do have Sickle Cell Anemia. The truth is that I didn't go to college because I was too lazy to…
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Added by Kim Davis on November 30, 2009 at 8:01am —
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Many times...more than not...I have wished pain on others.
WAIT...its not as bad as it sounds...let me explain.
My sister endured a recent hospitalization and it was one of those doozies where when they ask where you're hurting you can only mumble "
everywhere". I took her to the closest hospital, which is under five minutes away. She was in immense pain and hurting so bad I could feel it. Unfortunately my sister knows this particular hospital's practices pretty well and…
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Added by Kim Davis on November 29, 2009 at 7:28pm —
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Lately I've been talking about SC a lot. More than I ever have in my entire life. It is the one thing that I have always avoided and hated talking about.
Back in September I celebrated my 40th birthday. Words alone can't adequately express just how THANKFUL I am to have made it to the BIG 4-0!
According to my doctors, I have long out-lived my life expectancy; however, the Father said otherwise. I’m still here. Turning 40 had a major impact on me in several ways. First, it…
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Added by Kim Davis on November 24, 2009 at 9:01pm —
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So grateful I am to have found this community of SC bloggers. It is impressive to see the number of members here sharing themselves with one another.
The following post is something that I journaled about earlier this month. I feel compelled to share it here on this forum with all of you. Be encouraged!
~NO MATTER HOW HARD IT GETS, FIND A WAY TO FIND SOMETHING TO BE GRATEFUL ABOUT
For some reason I thought that the very next time I'd have to be admitted into the…
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Added by Kim Davis on November 24, 2009 at 8:09am —
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