Sikcell: People living with Sickle Cell

We still Hope

Ade Dotun Male Alexandria, VA United States: Like

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Blog Posts (18)
Discussions (124)
Events
Groups (3)
Photos (20)
Photo Albums (1)
Videos (26)

Ade Dotun's Apps (2)
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Profile Information

Profession: Marketing

Hobbies: Videogames, Movies, Music and Computers

How did you find this site?: Created it

How has living with sickle cell made an impact on your life?: Its made me who I am today and thought me how to push thru in the face of adversity and pain.

What are you hoping to gain by joining the site?: Life long connections

Your Website: http://twitter.com/#!/sikcell

Ade Dotun's Discussions

FDA approves crizanlizumab-tmca for sickle cell disease

Started Nov 18, 2019 0 Replies 0 Likes

Always tired in the morning

Started this discussion. Last reply by Derone Newell Apr 4, 2017. 19 Replies 0 Likes

Has this site been beneficial to you?

Started this discussion. Last reply by Ade Dotun Jan 7, 2016. 13 Replies 3 Likes

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Ade Dotun's Videos

Let's Talk Sickle Cell

Added by Ade Dotun 0 Comments 0 Likes

You have the power to unlock rare disease treatments

Added by Ade Dotun 0 Comments 0 Likes

My Management Leadership for Tomorrow video

Added by Ade Dotun 2 Comments 1 Like

Ade Dotun's Friends

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Ade Dotun's Photos

Ade Dotun's Groups

Clinical Trials

28 members
1 Comment 1 Like
Teens

31 members
7 Comments 9 Likes

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Gifts Received (6)

Red Ribbon From Jennifer Fletcher Red Ribbon From karen graziano Red Ribbon From Gaynell Tutt-Jenkins Thank You Note From Chris

Stay Strong!

Latest Activity

Tamra Reid liked Ade Dotun's blog post What does a cure mean to you campaign

Oct 28, 2023

Heather Avant liked Ade Dotun's blog post What does a cure mean to you campaign

Sep 20, 2023

Ade Dotun's blog post was featured

What does a cure mean to you campaign

For sickle cell awareness month this year, the cure sickle initiative launched a campaign on what a cure means to you. See the campaign here: https://curesickle.org/sickle-cell-awareness-monthChime in below and add yours as well! See More

Sep 19, 2023

0 Comments 2 Likes

Ade Dotun posted a blog post

What does a cure mean to you campaign

Sep 15, 2023

0 Comments 2 Likes

Ade Dotun left a comment for Ashley C Payne

"Happy birthday Ashley, hope you are well!"

Sep 7, 2023

Ade Dotun left a comment for Tammar Williams

"Happy birthday Tammar, hope you are well!"

Sep 7, 2023

Ade Dotun liked wellons's blog post Remington College Partners with Sickle Cell Disease Association of America for Blood Drives in 2010

Sep 7, 2023

Makinde Titilayo liked Ade Dotun's group Clinical Trials

Jun 20, 2023

Ade Dotun's Blog

What does a cure mean to you campaign

Posted on September 15, 2023 at 10:35am 0 Comments 2 Likes

For sickle cell awareness month this year, the cure sickle initiative launched a campaign on what a cure means to you. See the campaign here: https://curesickle.org/sickle-cell-awareness-month

Chime in below and add yours as well!

Taking Oxbryta? Want to be part of exciting research in SCD and make your voice heard?

Posted on September 30, 2022 at 6:07pm 0 Comments 0 Likes

RESEARCH OPPORTUNITY

The ASCEND study is seeking individuals who are taking Oxbryta to participate in a 3 month, app based data collection study. Up to $125 in gift cards will be provided in return for participating.

Learn more at …

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HAPPY World Sickle Cell Day 2022!

Posted on June 19, 2022 at 8:08pm 0 Comments 0 Likes

The Sickle Cell Consortium and Cayenne Wellness Center host “The 3rd Annual 24 Hour Sickle Cell-a-thon Celebration: Sickle Cell Has No Color.” Today 12 AM EST to 11:59 PM EST. They will be sharing the many different ethnicities with sickle cell from around the world. If you have not had the chance to join us in the past years, you’re in for a treat. For 24 hours, we Live stream different talks, activities, speakers, games, and much more with different organizations from around the…

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Happy sickle cell awareness month! How are you celebrating?

Posted on September 11, 2021 at 9:00pm 1 Comment 5 Likes

I’m excited to collaborate with Allstripes as an ambassador, especially in honor of sickle cell awareness month! They provide a comprehensive view of patient health records and research for rare diseases. Check out the…

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Sickle cell awareness month 2020!

Posted on September 8, 2020 at 5:18pm 1 Comment 2 Likes

Happy sickle cell awareness month Fam! Hope you are all doing well and doing something to help raise awareness this month of September. I did a video collab with the SAMI organization on confidence below, let me know you know your thoughts and what are some things that has helped you to build confidence in your journey so far? Look out for another podcast collab coming soon before the end of the month as well! Stay blessed!…

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Comment Wall (100 comments)

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At 7:30pm on August 22, 2021, D. Robinson said…: Thank you so much! I hope you're doing well also. :)

At 8:46am on June 29, 2021, Sean bond said…: What's good brother, I hope all is well with you, I'm doing great thank you.

I'm no longer in florida but now in Georgia and loving it.

At 7:44pm on February 5, 2020, Johanna Mack said…: Hello and thank you for accepting me. I wanted to learn a little more about your site. I have an organization and we do several events an I would be honor if I could share my events on your page.