My daughter has the majority of her pain in her legs so it is hard for her to walk when she is in crisis. Does anyone else have this problem, it makes her life very difficult. For the past 2 years she has missed so much school. She goes to school for three weeks and then she out for two weekks, I took her to the dr and they say her blood work is good. I took her to a pain management specailist and they said she is very strong and doesnt need any stroner medication. They gave her a medicine…

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My daughter came home yesterday. She is doing a lot better. She is so glad to be home. Thanks everyone for the prayers.

My daughter is back in the hospital. She started with pain and last night she had a fever. She did get to open her presents but then we had to take her to the hospital. Hopefully she wont be there that long. Everyone please pray for her. Thanks.

I was just wondering how long does everybody's crisis normally last. I have seen post where people have said there crisis last for minutes of hours. My daughters crisis lasts for like 4 to 5 days. Is this normal or abnormal? Please let me now. Thanks

Do you go to the hospital everytime your in crisis? My daughter has been in crisis for three days, She is eating and drinking, and I am using pain meds to control pain. She says she really dont want to keep going to the hospital. Any suggestions

As I stated before in previuos post I have a daughter who is turning 16. I have treated her like a baby all her life. I guess out of guilt I let her do less than my other kids. I give her just about anything she wants. I know it not right but I thought at the time I was doing what was best for her. I am now starting to realize that she is too depenedent on me. Everytime there is a problem she calls me for help, I dont mind, but she cant handle anything on her own.



For instance me or… Continue

My daughter is 15 going on 16, I know she has a couple of years before she will have to go to the adult clinic. I was just wondering if anyone had any suggestions on how to make the transition smooth. I know when you are a child they give you medicine with no question. As a adult I am told that they give you a hard time about pain medicine.

Has anyone every experienced severe muscle spasms. My dauhgter is 15 and the last 8 months have been horrible for her. Lately, her crisis have changed and she screams out saying that she has this sharp pain that runs from the top of her head to her ankles. She is taking morphine and everything and nothing helps the sharp pains. She was admitted in the hospital several times for this type of crisis. She was on a dilutted pump and she still would get the sharp pains. I just wanted to know if… Continue

I have a 15 year old daughter who has sickle cell. When I see her in so much pain I feel so helpless. She was diagnosed at birth, so it's been a long 15 years(worth it). She was doing really good up until about 2 years ago. She would have minor pain crises and alot of fevers(enemy) but nothing to major. In the last two years she has had severe pain. She went from taking Advilt to control the pain to now she is taking dilloted through the IV and she is still in pain. For all the mothers out… Continue