i have sickle SS and i just found out i'm six weeks pregnant... i'm happy but i'm more worried seeing that two years a go i had a misscarriage... do u guys have any advise for me?

It deeply saddens me that there are so many of us who still suffer in silence. I know what its like to feel like you are all alone in the struggle to be well, maintain, manage and cope with having SC. I understand the constant battle to live a 'normal', productive and uninterrupted life.

Likewise, I also know that it can be difficult to keep a positive attitude. To focus on what is good and right in your life instead of the pain and what you…

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This is Worth Sharing. Take What You will From It...

THE TEN COMMANDMENTS OF SICKLE CELL DISEASE

1. Accept Your Disease. Don't ignore it. Respect it, don't fear it. Learn how to master it and not let it master you.…

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Doing some college searching and it occurred to me to google "sickle cell scholarship"

and i was blown away by the number there are!

here are a few just for any high school jr. & snrs



http://www.collegescholarships.org/health/sickle-cell.htm

http://www.scinfo.org/scholarship.htm…



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Hey Everyone! I just joined People Living With Sickle Cell and I am suddenly filled with so much hope! I live in MN where only 12% of the population is Black and where I have probably only met 1 other person with sickle cell. I have felt so isolated. It is so hard living with an illness that you have to convince the doctors that you really are suffering from excruciating pain on a daily basis. African Americans already have to deal with the day to day racism that lives within our society. Add… Continue

The airways are popping. The media blitz is in full affect. Massive editorial posts have been sent all over the internet. The word is out. There MAY be a cure for Sickle Cell Disease.



According to a New England Journal of Medicine report dated December 10, 2009, researchers say that a new method of bone marrow transplantation cured nine out of 10 adult patients with sickle cell disease.



Researchers gave 10 patients ages 16 to 45 bone marrow stem cells. They gave… Continue

Angry or am I just being irrational, Im 16 its 5:15 and I cant seem to catch some sleep

Uncontrollable emotions followed by an uncontrollable pain

As I write tears are flowing, and I can feel the blood sickle through my veins

Im so sick and tired of living this life, but who is to blame. I've never been so afraid to die, a feeling of incompetence makes me feel ashamed

I have a appointment tomorrow to talk about transfusions. Because I've had acute chest over 12 times, in the… Continue