August 2013 Blog Posts (2)

All body pain

Have any of you ever had pain in many spots before that made it hard to get out of bed or even just get around your home? I have AVN, RA, and SCD (SS) and yesterday it took me 4 hours to get out of bed and when I finally did I just wanted to get back in bed. I tried going out with my brother and his new wife with my bf on our usual date night, but by the end of the night I couldn't even stand up. It took me 30 min to walk to the car that was parked 2 blocks away and then I had to be carried…

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Added by Austyn Hart-Tinsley on August 15, 2013 at 7:01pm — 2 Comments

Does anyone know how others can sign up to be a bone marrow donor

I have two children girl and boy! My daughter has the sickle cell trait but my son has the actual disease.(S.S) I have done testing to see if my daughter could possibly be a matching bone marrow donor for my son but she was not. My son is 7 months and he is doing great so far but I have coped with the fact that one day he will go through a pain crisis and has to live with this disease for the rest of his life. Does anyone know how others can sign up to be a bone marrow donor? What are the…

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Added by Miss tiana on August 14, 2013 at 5:00pm — 1 Comment

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