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Permalink Reply by Ronald Ragin on July 27, 2009 at 8:14pm

A long time ago people said SCD was contagious...LOL! The sad thing about our Disease is there are a lot of Blacks who don't know anything about SCD. Hmmmmm! Also, many blacks never get tested to see if they have a trait. We need to encourage all to at least find out before they marry or have children to get tested. Here again we blacks don't like Doctors and refuse to go get test done. Further, we don't pass our medical history on to our family tree and many in our family don't have the history recorded. We should talk about our disease at Family Reunion's and any time we get a chance.

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Permalink Reply by P.Allen Jones on July 28, 2009 at 12:41am

We need to get the name of that doctor and send him back to school. I'm shocked at his stupidity. My niece had a doctor tell her she couldn't have SC because she was "white". Problem is...she was 1/2 black AND turned out she had SC trait.This is why I'm an advocate for educating doctors (they are mis-informing the world) ;-(

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Permalink Reply by seulear hope on July 31, 2009 at 6:15pm

that is so true my friend , once i visited a doctor and he said iron is good for your body and i visited another doctor and he said iron is not good for my body . how who is right and who is wrong? they just mix me up for real .

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Permalink Reply by Nina on July 28, 2009 at 4:19pm

J. Know about our family medical history is the most important thing in life. Me neither knew about SCD until my sister went to donate blood and they test her. She have SC trait then we found out that was because my father has the trait too. I found I have SCD trait when my son's pediatrician call me to say that my baby blood scream came back with FS hgb and I should see a specialist. We went there and as I didn't know I had the trait, then I ask her if she was going to perform the test to know and she said it's was not important, I just should give my son penicillin and 3 mo later we'd have another appointment to have my son tested again. I got so upset and angry, first because I didn't know and my prenatal doctor didn't test me, and second, the specialist treat us like my son's health was nothing. By that time I ask my primary care doc to take my blood sample and do the test and started to read everything about SCD.
I'm preparing a good material to send to my brother's girlfriend doc. I think maybe he can't read.He can't say that he doesn't know much about SCD because he can't read English, must of the goods information I found about SCD are in Brazilian medical journals, in wrote in Portuguese.

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Permalink Reply by MS.KNIGHT on July 29, 2009 at 8:18pm

TELL HER DOTOR HE IS TELLING A LIE 1st MY DAUGHTER DOSE HAVE IT BUT MY FRIEND HER SON WAS BORN WITH IT CUZ AT 1st ITS CALLED FC THEN WHEN DA BABY GET LIKE 1 YR AND IT GO 2 SS R SC I HAVE SS & MY BABY HAS SS AS WELL

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Permalink Reply by B. Jewell on August 26, 2009 at 11:22pm

I have had a very prominent researcher/physician at a MAJOR hospital and university say to me, "Well its interesting that you have type SS Sickle Cell Disease, because we usually see darker-skinned individuals with type SS and lighter people with SC." Can you believe that? Blood is blood, and just because I "look" like I shouldn't have SCD or type SS for that matter, the fact is that I have African heritage. That is the predominant factor in Sickle Cell trait carriers. Of course, people of Middle Eastern, Mediterranean, and Latin descent have SCD as well, skin color/complexion shouldn't be a tool used to pre-screen folks. I still respect him as a doctor and we have a good relationship, but I just couldn't believe my ears!!!

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Permalink Reply by Sickle Cell Warrior on August 27, 2009 at 4:06am

Wow...ignorance indeed. That is one of the more crazy things I've heard in regards to SCD.

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