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Permalink Reply by Ade Dotun on September 20, 2009 at 10:16pm

I go to doctor bensinger in greenbelt, md
the number is 3019829800

they are pretty good, no compliants

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Permalink Reply by Novella M Kourouma on September 20, 2009 at 10:22pm

Yes Dr. Lanzkron of John Hopkins, is the director and SCD Champion of MD. They have an infusion center, with people fullt aware of what is needed for patients like us. I will need to check back to give the number. Hope this helps

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Permalink Reply by NICHOLE on September 20, 2009 at 10:52pm

Since my child is a infant and she is the one with Sickle Cell her doctor is Dr.Sohail Rana and he is located at Howard University, and he is the best doctor/person I have on my child's team of doctors.Not only is he personal but if you have any concerns or problem he has meetngs with the whole family who has to deal with my child.The day I meet him I knew god has sent me to the best place and I would recommend him to anybody!

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Permalink Reply by Sickle Cell Warrior on September 21, 2009 at 12:55am

Hey everyone....thanks for these recs, I will forward them to her. Anyone else...please pitch in!!!

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Permalink Reply by Jon on September 26, 2009 at 11:08pm

I know I couldn't have been the only one experiencing these ignorant doctors and so called health professions, until I found this blog space. I was going to start mine but I've been lazy about it and I guess maybe the anger I'm still feeling inside of me is not allowing me to be able to put my thoughts together on paper/blog. At 40+ almost 50, and, I will celebrate that landmark and more in good health by the powers that be, amen. I have never had an operation nor blood exchange/transfusion, don’t take folic acid cause it affects my body somehow and I have experienced medical treatment from Nigeria to London and then to the not so popular US of A.
You would think in a society where they have a high concentration of people from African and Mediterranean origin they would have a better understanding of the ailment/diseases.
As time goes by I will post my little contributions for your information and I believe that we should where ever possible when narrating our experiences mention the culprits of theses medical atrocities by name, that way it will help us identify the bad ones and help others to avoid theses medical institutions, also by identifying these institutions that way we will be forcing them to change their practices against SS and hopefully force them to get better. I personally don’t have no problem identifying the culprits by their names, let them sue me, I will really love that, I'm ready. From Laurel regional to Doctors and the most notorious Howard hospital.
I relocated to USA 10 yrs ago, my son is a second year student at the University of Portsmouth in London, my daughter is 12yrs old in 8th grade they carriers and not SS, I'm thankful to God for my mother who took good care of my brother and I from an early age, I was really privileged because I had parents who were well educated about the disease, actually I don’t like using that word, I’ll substitute it with “ailment” because to me its not a diseases, a diseases is something you catch this is a hereditary condition, sorry I won't go into medical jargons. This is a genetically mutation of the blood cells that happened years ago through nature trying to take care of its own. I will explain that statement later.

Any way you would think at my age I will know and have a better understanding of my condition, with those so-called medical twits who think they know you more than you know yourself.

I have found myself in ERs in excruciating pain that I cannot breathe and the triage nurses would not even attend to you if you cannot talk to them, answering their questions, (can some please tell me how a person in that kind of pain/condition talk?)..to a doctor telling me they are going to give me a trail dose of a medication that I am allergic to. Please do I look like a lab rat? To a nurse telling me I cannot be in that kind of pain level to require the medication dose that I'm getting...”that the monitor, please I’d like to know the monitor that monitors a SS pain level, does not show that I’m in pain, making you feel like you lieing. When a female medical professional asks me what’s my pain like, I always reply by first asking them if they have ever experienced child birth, and if they reply no, I tell them, then you can’t even begin to have an idea of what I’m going through so I will not even attempt to explain to you what the pain feels like and for the males I don’t even answer them. Please does any one know what Phethedine is? I hope I spelled it right, when I’m in crises in London they give me 100mg/2-4hrs...its a synthethic optiate opiate like Demorol (meperidine) that has a diferent way of breaking down in the body system cos its not organic, so that’s equivalent of 100mgs/2-4hrs of Demerol and they treat you here like you some drug seeking addict. . Please I can go on and educated these half-baked doctors/medical professionals of their own medical jargons, Oh! by the way did I also mention that I'm a trained drug addiction councilor? And then the powers that be want to label us as, drug junkies….
I thought may be going back to school to study medicine will help me fight the system from within, but then seeing how my sister “Vixin” an RN, how she was treated in her own hospital.

My life style is tooo busy to be strapped down some where on an hospital bed, and these, O God I’m so so vexed when I’m narrating all these nightmares I experience in an environment that suppose to make you better. In London once you get to an ER and say you have SS, check out how they treat you even before the doctors get to you, compared to the ER here in DC metro area. Well that’s one on the more reasons I’m planning on relocating back to England because I’m not going to let these people kill me before its my time.
Oh I love my doctor, please all my SS warriors only a few Caucasian doctors and nurses no of you plight but they better of their African American counterparts who you would think should have a better understanding of SS come to find out they don’t even have a clue of what it is. The Asian doctors are better, my PP is very good, I manage myself as much as I can at home but now and again I get some relapses that I need to be in an hospital environment for treatment. I get my adequate supply of Demerol and percocet at home because I don’t have medical insurance as I could not get insured because the insurance ppl told me I have an existing illness. So I find it cheaper for me to pay my $50 for every doctors visit and paying $150+ for my meds than going to hospital for 24hrs and getting a $10k+ hospital bill.

I will stop here, I just used this opportunity to write something to introduce myself, as time goes I will add some more and let you all know my blog space. Till I read from you all soon stay strong and keep up the fight, no one will do it for us, we have to do it ourselves, quoting our grate president, “a voice can make a change” " I know my redeemer lives"Y’all stay blessed!
Come join my FB group

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Permalink Reply by adeka on September 27, 2009 at 10:20am

HI warrior !
I ned Nicosan. where can i order or buy ? Please help.

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