Sikcell: People living with Sickle Cell
We still Hope
Longest amount of time being crisis free
Hello,
I was just thinking today that I've not had any problems since the year began ,Thank God!
I was wondering what your longest time you've gone w/o a major crisis.
Think mine is 11months w/o being hospitalized.
I was just thinking today that I've not had any problems since the year began ,Thank God!
I was wondering what your longest time you've gone w/o a major crisis.
Think mine is 11months w/o being hospitalized.
Replies to This Discussion
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Permalink Reply by Sickle Cell Warrior on
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I'm out of Nicosan and its hard to come by.
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Permalink Reply by eval king on
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I keep hearing about this Nicosan is this on the same line as Hydroxyurea ? and how long do you have to take this before you see a difference? I have one question why haven't the doctors in the United States mention anything about this drug?. I would love for my daughter to try Nicosan.
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They longest my daughter has been out of the hospital is 3 months. Thats only because of the blood transfusion she recieved in Feb.
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Permalink Reply by Tari Harden on
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well the longest i went was just under 11 mos....i started to lift weight and that seemed to help tremendously....it built my physique and it keep me from sickling
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Permalink Reply by Princess Aleah on
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I haven't been in a crisis for 2 years plus when i was around 14-15 the the doctors put me on hydroxeruea and i've been in and out the hospital a lot. Since i stopped taking it ( by choice) some time last year i haven't been in the hospital for about 7-8 months and counting. I believe in my hert that God has healed me no matter what the doctors say i'm standing on God's word.......Stay strong my fellow Sickle cell people. Drink lots and lots of water and stay hydrated.
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Permalink Reply by Ebony Ravenell on
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Well I was in pain for two days so I guess it would be a day without pain? My knees locked up on me and I wouldn't walk I hate taking pain killers so of course I thought sleep would help. I woke up 2 in the morning crying so I got up had to nearly crawl to my dads room slept under cold air for the night and with my dog at my side who would not stop following me and ignored all my order. shes my good friend and my best dog!
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Permalink Reply by *Shawnii* on
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My last time was 6 months ago, and I was in there for a week. I don't remember going longer then 6 months honestly...and i cant believe its actually 6 months now! Part of me didnt want to reply to this because literally every time I say something about how long ive been healthy i get sick...lol..wish me luck!
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