I just came home from being in the hospital for 8 days. i feel much better now on a scale of 1 to 10 my pain level is about a 4 which is tolerable for me i am hardly ever completely pain free anymore. i can't remember the last time i was completely pain free but 4 or less i can deal with 8 or more for more than 24 hours straight and i need to go to the hospital especially since i take 160mgs of OxyContin twice a day plus 60mgs of OxyCodone for breakthrough pain as needed. When all of this fails… Continue

Hello everyone on the People living with Sickle cell website. I am a new member who has been very surprised to find this site. I was completely blown away with all the info on the site. I have been living with Sickle Cell Disease for 40 years suffering pain crisises for 38 of those years. I arrogantly believed that I knew everything about my illness but in the last few months I've experienced things that had never happened to me before and started searching the internet for more and more info.… Continue