Sikcell: People living with Sickle Cell

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Maurice introduces himself to the community

Hello everyone on the People living with Sickle cell website. I am a new member who has been very surprised to find this site. I was completely blown away with all the info on the site. I have been living with Sickle Cell Disease for 40 years suffering pain crisises for 38 of those years. I arrogantly believed that I knew everything about my illness but in the last few months I've experienced things that had never happened to me before and started searching the internet for more and more info. That's how I came across this site and I found more than enough info. Until 3 days ago I didn't know that iron overload could kill me!! I've had well over a hundred transfusions in my life and my hematologist told me a few times about some of the things that could happen because of the iron overload but I wasn't to concered and didn't take it that seriously until watching the video of the father who lost his daughter to iron overload who was warning people about the dangers of iron overload. Well after learning that she passed with a count of 6000 I saw my hematologist the following day after being spooked by what I had learned asking all types of questions and learning that my count is a little above 4000!!! Well needless to say I FULLY I mean "FULLY" UNDERSTAND the dangers of iron overload and will be no matter how nasty or unpleasant the Xjade is(the medicine that I already had on my nightstand to take excess iron out of my system) i will be taking it. Now a few things about myself I'm born and raised in North Philly I now live in San Diego. Thats it for now I gotta go lay down I'm hurting a little right now and my meds are kicking in. Reese

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Comment by P.Allen Jones on February 25, 2010 at 7:23pm: Hi Reese. There are so many resources on-line for people with sickle cell. We have to inform ourselves about everthing...including supposed "cures". Check out the various blogs too (I have one) where we "patients" speak, inform and advocate for the cause of people with SCD. God bless!!!

Comment by Chantell-the Overcomer on February 24, 2010 at 3:12am: By the way I hope u r feeling better...

Comment by Chantell-the Overcomer on February 24, 2010 at 3:12am: Hey Reese, Welcome!!! I'm like u look for some new was to deal with SC and that's how I found this site... Everyone on here has been helpful....

Comment by Preston on February 23, 2010 at 7:01pm: I know I'm a couple days late but... Welcome!!!

Comment by Tracy H. on February 20, 2010 at 10:22pm: Welcome Maurice! Thank you for sharing, iron overload is in fact a VERY important subject in our community. Feel better!

Comment by Nana007 on February 20, 2010 at 11:55am: Welcome Reese!

Comment by Thewana Bradley on February 20, 2010 at 11:06am: HI REESE!!!! HOPE U R FEELING BETTER!!!!!!!!!

Comment by Sickle Cell Warrior on February 20, 2010 at 2:53am: Hi Reese! Thank you for letting us know the dangers of iron overload. It's one of those things that you can never know unless someone tells you.

Comment by Ade Dotun on February 20, 2010 at 2:03am: Hey Reese, Welcome aboard, glad to hear u find the community helpful...and i hope u r feeling better..