Sikcell: People living with Sickle Cell

We still Hope

Ade Dotun's Likes

December 2021

HYDROXYUREA I REALLY DONT GET THE WHOLE HYDROXYUREA CAUSE I'VE BEEN ON IT FOR ABOUT 4 YEARS ON AND OFF BUT I DONT SEE ANY IN PROVEMENT CAUSE I'M STILL IN THE ER ABOUT 3 TO 4 TIMES A MONTH ANS ADMITED IN THE… Blog HYDROXYUREA 1 Like sickle cell intense hip pain I'm having intense hip/buttock pain that I can't move my leg without painkillers, does anyone know anything about this type of sickle cell pain? I have sickle cell beta thallesmia minor and my whit… Discussion sickle cell intense hip pain 1 Like Corporate Work and Sickle Cell I recently graduated from college and began working full time in consulting. I get up at 6 *cough 7* and usually dont get home until about 6/7pm. I've been trying to get a consistence sleep schedule… Discussion Corporate Work and Sickle Cell 1 Like

September 2021

Daily pain after a 13 YEAR hiatus... im going through a rough time right now, i have sc type and i am having my first real.....id say battle with my sickle cell, for the past 9 months now ive been trying to get my pain under control aft… Discussion Daily pain after a 13 YEAR hiatus... 1 Like 001

photo 001 1 Like Hello There I just joined this website not to long ago. I'm so happy I found out it to be able to connect with others with Sickle Cell disease is great. Especially since I'm the only one in my family with the… Blog Hello There 1 Like Life Insurance. Got turned down AGAIN for life insurance -_- I don't know if its just my country (Bahamas) that's gay or what but shit that FUCKED up. Discussion Life Insurance. 1 Like

August 2021

Poem. I have sicklecell -by Bart Hak Miss Yumi, I have a disease too you know, is what you said When I told you about what kind of man I am. It’s called sickle cell anemia, Is what was told to me I looked it up and saw what price was o… Discussion Poem. I have sicklecell -by Bart Hak 1 Like People asking you for your medication I have had problems throughout my life where people in my life have come to me and asked for some of my medication. In most cases there is absolutely nothing wrong with them, they want it for… Blog People asking you for your medication 1 Like Dealing with fear/paranoia about getting rea… Hi All, I just found this website today and had a question: are any of you really fearful of having severe crises, and if so, how do you deal with it? Let me explain. I am a 23 year old female who… Discussion Dealing with fear/paranoia about getting rea… 1 Like Hate what the Pain Meds make you say... What did I Just Say? I hate when you have no inhibitions when on big doses of pain meds(Narcs) and when you come off them u realize u said something u shouldnt have said or was embarrsing and then u just wanna run away… Blog Hate what the Pain Meds make you say... What did I Just Say? 1 Like

June 2021

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photo fd3b82c4-be9c-4b80-8589-352c18766821 1 Like Worried Mommy

Hello. My husband and I just adopted our precious son, Markelle Isaiah, who has SCD, SS. He's 3 weeks old, so he hasn't had any symptoms yet. We didn't know much about SCD until Markelle joined…

Blog Worried Mommy 2 Likes The Hibiscus Study The Hibiscus Study™ is inviting adults and adolescents 12 to 65 years old with a clinical diagnosis of sickle cell disease (SCD) to take part in a clinical research study. The primary purpose of the… Discussion The Hibiscus Study 2 Likes Sickle Cell Trials for South Florida residen… Hi my name is Rachel I work for a research facility in Miami, Florida. We are very passionate in helping fight the battle against SCD. The current trials are as follows: Duration: 14 weeks Inclusion… Discussion Sickle Cell Trials for South Florida residen… 1 Like

May 2021

Sickle Cell Studies in Miami, Florida

Currently, there are a few different clinical studies for sickle cell disease. Must live in South Florida. To prequalify or to receive more info go to …

Blog Sickle Cell Studies in Miami, Florida 1 Like

April 2021

Cure Research I was wondering what the latest research is on the treatment for sickle cell anemia. Has there been any discoveries in being closer to a cure? -Adriana Blog Cure Research 1 Like Seems like my health is getting worse with age, anyone else?

I am 30 years old now and it seems like I'm in the hospital every other month. In my teens and twenties I was great, virtually now problems and no hospital visits! Now, I'm a mother of 2 and…

Blog Seems like my health is getting worse with age, anyone else? 1 Like Help! Advice wanted!

My 13 months old was diagnosed with SC last week. I am reading and learning as this is all new to me. I would appreciate any advice regarding nutrition, medication etc. Drs prescribed daily…

Blog Help! Advice wanted! 1 Like Spleen Sequestration.. is there a way to reverse it? Hello, im new here and hope i can find help. my child is sickle cell diseased. he is my only child so far. he developed a spleen sequestration at 12 months then again another one at 15 months (last… Blog Spleen Sequestration.. is there a way to reverse it? 1 Like Chronic Pain.

I am a 26 yr. old female living with SCD (SS). I have read many things on Type (SS) being most common and most severe form of sickle. For the past 3 almost 4 months to this day, I have had crisis…

Blog Chronic Pain. 1 Like