April 2021
Chronic Pain.
I am a 26 yr. old female living with SCD (SS). I have read many things on Type (SS) being most common and most severe form of sickle. For the past 3 almost 4 months to this day, I have had crisis…
Blog
Chronic Pain.
1 Like
uhhmmmmm... hey?
Sup, i dont usually blog but i guess ill atleast tell u bout myself. Im 19, currently goin to ITT Tech for associates in visual communications, Im a real laid back person, it takes alot...ALOOOOOOT…
Blog
uhhmmmmm... hey?
1 Like
This stupid disease
Hi everyone, I am Nikki I am new to this. I have hgb SS. I am a 36 year old female. Ihave had 4 strokes, and I have CHF and have compression fractures in my back. I live in the Washington DC metro…
Blog
This stupid disease
1 Like
March 2021
Hello Guys
Hello everybody,am going through a serious heartbreak and am so dead over emotional...i just need some blunt advice to move on.have been in pain since and i just need help to move on with life.
Blog
Hello Guys
1 Like
How dangerous is low haemoglobin?
Hi everyone. Hope we are all in good health. Please when dealing with blood levels,how low is terribly low. My HB is usually around 6.6 or my highest is 7 during the good times and i have a heavy…
Blog
How dangerous is low haemoglobin?
1 Like
Something 2 Think About
The French writer Montaigne said, "The most uncouth of our afflictions is to despise our being." Sometimes we let it slip by us to not allow our high standards to defeat us! For what spurs you to…
Blog
Something 2 Think About
1 Like
new friend
hi. iam happy to find this wep .i,m 34 years i have sickle cell with three brothers one of them died this years . i hate to bee yellow eyes and face . i hop thate you can accept me with you and share…
Blog
new friend
1 Like
February 2021
Stem Cell Research
Today me and my family entered a study conducted at NIH on stem cell research.We have a 20 month old baby with Sickle Cell SS and we currently are expecting a baby in February that we dont know the…
Blog
Stem Cell Research
1 Like
hi
hey im , new here and i hope to enjoy the new experience.
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hi
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My Admissions Paper
I’m pursuing thisprogram as a part of my goal to create a positive impact among the people of mycommunity in relation to the fields…
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My Admissions Paper
1 Like
Sickle Cell Travel Hacks
I traveled recently and found myself in a bit of pain from the cold on the plane (I should have known better and brought a blanket or hoodie) I eventually got a blanket and took some medicine and was…
Discussion
Sickle Cell Travel Hacks
2 Likes
insurance coverage
Do you guys find it hard to get Medical Insurance when you have sickle cell? I have a friend who may be traveling.…
Blog
insurance coverage
1 Like
Men Using Hydroxyurea
Are you able to or have you had any kids while on or after using it? Really curious. I want to have children.
Discussion
Men Using Hydroxyurea
1 Like
January 2021
As far as dating goes
How long should you wait to tell the person your in a relationship that you have sickle cell? Are you wrong for wanting to wait a while to see how things work out in the relationship before you tell…
Discussion
As far as dating goes
1 Like
Are sicklers 'brighter' in academic work tha…
Upon being told that my son had SCD, i had many advisers, sypathisers etc but i never expected anyone to tell me that at least i didnt have to worry about my child being 'dull' at school. I have come…
Discussion
Are sicklers 'brighter' in academic work tha…
1 Like
Chronic Leg Ulcers
Friends,
I would love you to share your thoughts on this issue. I am 40 years old and seriously afflicted with massive ulcers on both the medial and lateral side of the left ankle.
What has been mo…
Discussion
Chronic Leg Ulcers
1 Like
Our own thoughts can be healing
Do you think that thoughts are responsible for feelings or would you argue that feelings bring about thoughts? According to Cognitive Behavioral Psychology, the first assumption is true. Not only…
Blog
Our own thoughts can be healing
2 Likes
Venting session
Hi everybody. I am having a rough week and just need to vent, especially to those who "feel my pain." My pain crises began on Tuesday morning. Both my arms are in a lot of pain. From my…
Blog
Venting session
1 Like
How does having Sickle Cell affect your Social & Dating life????
Hola Everyone,
I was just wondering how your social and dating lives are affected by…
Blog
How does having Sickle Cell affect your Social & Dating life????
3 Likes
What's in your genes
video
What's in your genes
1 Like