Sikcell: People living with Sickle Cell
We still Hope
Ade Dotun's Likes
June 2023
Penn Med SCD Contraception Study
The Women’s Health Clinical Research Center at Penn Medicine is currently recruiting participants with sickle cell disease for a paid study looking at whether participants experience any…
Blog Penn Med SCD Contraception Study 1 LikeApril 2023
Stacey
Member
Stacey
2 Likes
July 2022
On The Other Side Of Through
That's the title of my new Blog Post at my sight....http://1chanceonly-bigdaddy54.blogspot.com/ hope we can get a discussion going about some of this. Maybe it will help someone.
Blog
On The Other Side Of Through
1 Like
Beware of Sedenafil (Revatio) Study for Sickle Cell Halted
Don't know if you are familiar with this study on the effects of sedenafil on Pulmonary Hypertension? Pass it…
Blog
Beware of Sedenafil (Revatio) Study for Sickle Cell Halted
1 Like
Some Good Things Turn Our Not So Good
I just posted on my site that after my hospital stay a week ago I had to go back to have my Port looked at. Find out what happened and join in on the conversation at the link…
Blog
Some Good Things Turn Our Not So Good
1 Like
Day 5 At Sickle Cell Camp
View my blog and you will read about my hospital adventure as well as the Sickle Cell Camp in Los Angeles. Click on the link below.
http://1chanceonly-bigdaddy54.blogspot.com/ Blog Day 5 At Sickle Cell Camp 1 Like How Do I Feel I place a new post on my blog. Since I am recuperating from the hospital, I thought I would talk about this subject. Hope you can join in on my comment… Blog How Do I Feel 1 Like
http://1chanceonly-bigdaddy54.blogspot.com/ Blog Day 5 At Sickle Cell Camp 1 Like How Do I Feel I place a new post on my blog. Since I am recuperating from the hospital, I thought I would talk about this subject. Hope you can join in on my comment… Blog How Do I Feel 1 Like
May 2022
INCESSANT PAIN
Hi warriors, I had one of the worst crisis Nov last year and was hospitalised for about a month, ever since I've been experiencing constant pain in most of my joints. I take Pentazocine injection…
Blog
INCESSANT PAIN
2 Likes
April 2022
My Uncle works with medicines, and helps research treatments and cures....he found this for me...
There are two Trials that they are testing on Sickle Cell patients, look them up on Google for more information about these trials, also you can directly contact the investigators by using the phone…
Blog
My Uncle works with medicines, and helps research treatments and cures....he found this for me...
1 Like
Anyone use these products?
<a href="https://healingblendsglobal.com/collections/sickle-cell">https://healingblendsglobal.com/collections/sickle-cell</a>
Is it good for those with beta thallesmia minor? I gotta fight to move, I tire down very easily...
Discussion
Anyone use these products?
1 Like
All body pain
Have any of you ever had pain in many spots before that made it hard to get out of bed or even just get around your home? I have AVN, RA, and SCD (SS) and yesterday it took me 4 hours to get out…
Blog All body pain 1 LikeMarch 2022
my daughter
Dear All,
I am fairly new to this site. I joined because i have a daughter with sickle cell. she is 10 months old and has had one crisis. It wasn't too severe, we were admitted for one night… Blog my daughter 1 Like
I am fairly new to this site. I joined because i have a daughter with sickle cell. she is 10 months old and has had one crisis. It wasn't too severe, we were admitted for one night… Blog my daughter 1 Like
February 2022
what i think.
i think we need a blood count machine of some kind, a hand held something so that we could check our blood count at least once a week because it's not fun going to the hospital and have to wait…
Blog what i think. 3 LikesJanuary 2022
BukkyAde-cartoon
photo
BukkyAde-cartoon
1 Like
My Life with Sickle Cell Disease
I have started a daily blog about my life, check it out at:
http://livingwithsicklecelldisease.blogspot.com/ Blog My Life with Sickle Cell Disease 1 Like me So today I thought was a,good day went to class and then came,home went to.sleep when I woke up my srms and legs hurt really bad I couldnt even feed my son Blog me 1 Like living with sickle cell I believe my daughter has a mild case of Sickle Cell, compared to me. I pray to God she does not have to endure the severe pain that comes with having a pain crisis. She has been hospitalized a few… Blog living with sickle cell 1 Like STRESS and SCD My SCD is acts up very easy when i get stress and it gets really bad really fast. I am a full time student, employee and Girlfriend. Its hard for me to stay calm and not stress. Just small worry give… Discussion STRESS and SCD 1 Like
http://livingwithsicklecelldisease.blogspot.com/ Blog My Life with Sickle Cell Disease 1 Like me So today I thought was a,good day went to class and then came,home went to.sleep when I woke up my srms and legs hurt really bad I couldnt even feed my son Blog me 1 Like living with sickle cell I believe my daughter has a mild case of Sickle Cell, compared to me. I pray to God she does not have to endure the severe pain that comes with having a pain crisis. She has been hospitalized a few… Blog living with sickle cell 1 Like STRESS and SCD My SCD is acts up very easy when i get stress and it gets really bad really fast. I am a full time student, employee and Girlfriend. Its hard for me to stay calm and not stress. Just small worry give… Discussion STRESS and SCD 1 Like
December 2021
Is there any assistance for us living with s…
Any benefits we can apply for? My insurance is too expensive and I was wondering if we're able to receive any assistance in this matter? maybe cheaper insurance or free check ups or something of that…
Discussion
Is there any assistance for us living with s…
1 Like
When experiencing a crisis, what are the tre…
My wife receives Morphine, I V Fluids and two units of blood if needed.
Discussion
When experiencing a crisis, what are the tre…
1 Like
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