Forum Discussions (244)

Discussions Replies Latest Activity

Bone marrow Transplant

Good day fighter! May almighty God give you strenght and power to fight and conquer this disease. I heard that bone marrow help in curing s…

Started by niyi niyi

12 Aug 31, 2009
Reply by Nina

How do you cope with a big move? Living in NYC with SCD?

Hey y'all. Ive been given the amazing opportunity to go to school in NYC and although I want to go, I'm afraid. All my life I've had the s…

Started by Kevin H

7 Aug 30, 2009
Reply by Sickle Cell Warrior

Crazy thing about SCD...

Oh my God.... My brother's girl friend is 5 mo pregnant and as my brother has SC trait we advise her to take the test to see if she has too…

Started by Nina

7 Aug 27, 2009
Reply by Sickle Cell Warrior

Just joined for my kids sake

Hello, We are missionaries in East Africa (originally from Oregon) and have adopted two children with sickle cell disease. The first one w…

Started by Summer McCourtney

2 Jul 28, 2009
Reply by Sickle Cell Warrior


I just wanted to know has anyone experienced having severe pain in their lower extremities. Like your ankles and feet. Just curious because…

Started by Tiffany J. White

5 Jul 26, 2009

What did i do wrong ???

I recently went to my Jr PROM. But unfortunately my legs were hurting so i couldn't dance. My Prom was on a Friday, Saturday i didn't get o…

Started by Kierra Johnson

2 Jul 19, 2009
Reply by Sickle Cell Warrior

false teachers

how do you counter older people who spread misleadng and incorrect information about sickle cell who are viewed as authorities of a sort?

Started by Lusubilo

2 Jul 19, 2009
Reply by Sickle Cell Warrior

What Complications has sickle cell caused you,personally?

Honestly, right now I feel like the sickle cell NOT whats "afflicting" me but the side complications. 3yrs ago I had a DTV in my lower left…

Started by Bukky Ade

2 Jul 19, 2009
Reply by Dave

Blood clots

I was wondering if any of you have ever had a blood clot,or maybe some you know. how are you.they doing now? Did you experience "post thro…

Started by Bukky Ade

7 Jul 19, 2009
Reply by Dave

how do u deal with doctors that dont belive your in pain or ask u wat dose of pain meds u take and then tell u that oh that cant be thats 2 high of a dose im only gonna give u half of that or less?

sometimes i get so mad because they dont kno how we feel i dont even think that they would be able 2 handle wat we go thru

Started by shimenese

17 Jul 16, 2009
Reply by Sickle Cell Warrior


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